Massive Cyst - 20 x 20 x 14 cm

[Mondo cyst]

Hi there!!  I have been diagnosed with an ovarian cyst that is at least 20 x 20 x 14 cm.  That's so huge!! It continues to grow as my specialist continues to fight for an operating room.  Apparently, because I am not in serious pain, serious discomfort, but, not pain, it is not considered an emergency!!  Freaky, eh?  I have looked and looked on the internet for other women with an ovarian cyst that even comes close to what I am packing around and I just can't seem to find anyone or for that matter any evidence or reports of women having one quite so large.  Is there anyone out there in this foum that would relate and be able to share their experiences with me?

[xrayu2]

My boss had a 20cm cyst when she a child and it was benign.

[pianist]

Hello,



Mine was 18 cm and it was NOT beneign.  Please... and please shows more urgency and maybe even exaggerate a bit to your doctor.  I was not in much pain until two days before I went to the ER.  When the pain really hits you, you will not be able to move.  I laid in bed more 6 hours without moving at all.  My friend offered to take me to the ER but I just couldn't move an inch and I didn't want to call 911.  It was very close to rupture.



99 % of a cyst like that (mine was dermoid or tereatoma)is beneign.  So I was the "special" 1%.  For a cyst bigger than 10 cm, the doctor should suspect the possibility of its nature.  When you schedule the operation, you must request to talk to a gyn/oncologist.  My situation was that the doctor didn't suspect anything.  He was to open me up again and found out what stage I was in.  Don't let them make this mistake!!!  You need to be proactive!  Even if it's cancerous, the curable rate of this kind of tumor is highly curable.  So don't worry and deal with it one day at a time. Take care and I'll be thinking of you!

[hershe]

Hey,Well I am one who is dealing with the same situation,probably worst mine is 25cms.on the right and a 5cm. on the left.Asdyourself I aint in much pain and I found out in November My sergery is 2 weeks from today almost 2 months later.

Yeah,I know the discomfort MOSTLY at nightI sometimes have really bad nights.My doctor is going to take the right overy hes hopeing to save the other one but if not he says anything look funny its going to do a THA.Anyway,thats what I am facing scary yet blessed It could be worse.Keep your head up!How long have you had it?

[xrayu2]

Pianist,

Did your cyst rupture and send you to the ER or was it just the pain you had that sent?  What type of ovca was it?  My cysts ahve recently ruptured and my doc has not called back even though the report was faxed to his office within an hour after I had the u/.  He has had surgical cases all week and I have my pre-op visit on Monday.  I know if it was malignant like they suspected then there really is not much they can do at this point because the damage has been done.

[pianist]

Hi xrayu2,



Mine was not ruptured, but very closed.  MY type is called Immature Teratoma.  Teratoma is the same as dermoid cyst.  Do you know what kind of cyst you have?  99% of the teratoma is beneign (mature), and only 1% is immature (cancerous).  Teratoma is a kind of germ cell tumor, usually happens in teenage girls or young women is their 20s.  How bad is your pain?  If you pain is very bad then you should go to the ER, though I know your pre-op appointment will be on Monday.  I went to the ER and had an emergency the next day.  Again, it depends on your situation, but it doesn't hurt to request to consult a gyn/onco or your surgeon should have a gyn/onco on call at least.  Take very good care and hope the best for you! - Pianist

[xrayu2]

I have a gyn/onc and he has not returned a call for he has had surgery since my u/s.  My u/s pre-scheduled and it was found incidentily that my cysts had ruptured.  We have no clue what is going on in my pelvis.  Bilateral complex cysts are the only diagnosis I have at this point.  The left ovary has a solid mass with papillary projections making it suspicious for a cancerous lesion.

[Crystalcp2]

HI Everyone , This isn't about me but my sister at age 19 a few years ago found out she had a cyst on her ovary the size of a volleyball, it twisted and there was another cyst on her other ovary.  Unfortuantely, she doesn't have children so the Dr.'s took the larger cyst and ovary, tube.  It was upsetting to me how long it was taking for the Dr.'s to take it out.  Like someone else's story, they were waiting for an opening. That is wrong, in my opinion.  Around the same time, I started having problems with my cervix, with what happened to my sister, I thought I am definitely not seeing the same Dr.  My sister had symptoms, like her bleeding the color black.  She also was in a lot of pain.  She gained lots of weight.  My sister also was shy and would never go to the Gyno.  I make sure I go every year and when I have unusual symptoms.  My sister is still with the other cyst and won't have it checked out.  I really don't believe she had any other check ups.  Anyway what I am getting at, I went to a big hospital in a big city, which my Dr.  is affiliated with.  I got tired of being treated so slowly here.  There was no I can't get you in, My Dr. said do you want it before the holidays or after.  The first date I suggested was available...  Also you have to make the decision yourself, if it is scaring you tell them you want it out now, but also give yourself enough time to prepare especially if you have children, work, or many things you need to do beforehand.  Good Luck, I am glad you aren't having symptoms.

[Mondo cyst]

Thank you so much for all the responses...



Since my post I have recieved a surgery date, January 20th and it is believed that my cyst is not cancerous, at least until it is examined.  My blood test show no elevated levels so, the specialist is fairly confident that it is cancer free.  WHEW!  Although it is growing, what seems like everyday and boy oh boy is it starting to get uncomfortable!!  The top of it is past my 4th rib and I look more and more pregnant everyday!!



It is unbelievable that a women can walk around with such a massive tumor and not be taken care of in a timely fashion.  I have been aware of this since mid November and by the time I have surgery it will be 9 weeks!  It's a shame that we and our tumors are not taken more seriously!! I'm outraged!  When Canada is done with our federal election, I, for one, am going to raise some hell!!  I'm not too sure what I can do, but I will do something.



What is really disturbing, here in Canada, is that when sitting in an emergency room or doc's office and a worker comes in hurt on the job and needing stitches, he or she is seen without hesitation and we, who have massive tumors in our bellies are made to wait and ignored.  It's a crying shame!!



Anyway, thatnks agin to all that have responded, it truly helps to know that you are not the only one with such a beast living inside them.



You girls hang in there!!

[tggktf]

Hello everyone,



I had a hysterectomy 7 years ago and chose to leave my ovary and fallopian tubes since I was only 31 years old. I just went to the gyn recently for an annual exam and they felt tomething. Proceeded to send me for and pelvic ultrasound and transvaginal us. Test revealed multiple ovarian systs bilatteraly the largest one on the left ovary measuring 8.5x5.0x7.0cm. which meams 60 millimeters or 6 inches. Very big if you ask me. The doctor proceeded to do a ca 125, fsh, lh, tsh all came back normal. The ca-125 was 6. He then referred me to a oncologist gynecologist who immediately scheduled me for surgery. I am scheduled for a bilateral salpingo-oopherectomy with bilateral lysis of adhesions on jan 25, 2006. In the meantime of I have developed alot of gi symptoms to boot and have no idea if they are related to any of this. I had an endoscopy the other day and showed I have a hiatal hernia, esophageal strictire, and gerd. Now need to take nexium 40 mg bid indefintely. I am very nervous and very concerned that I may indeed have ovarian cancer. All the best ot everyone..........

[sher418]

MY daughter just found out she has a 14 cm cyst on her ov ary. 2 years ago she had her other ovary taken out for the same thing. Her bld test came back elevated. Does anyone know what that means? She's only 26 and wants to have children. I hope she doesn't have CA. Any thoughts?