Autoimmune disease?

[skc04]

Almost 4 years ago - I noticed blurred/dim vision in my right eye - after much testing, was told optic neuritis, then maybe optic neuroretinitis - has never improved - still the same after 4 years. Through the use of photography - the doctors say it is still ongoing as they can see changes in the optic nerve inflammation - leading them to believe it is some kind of underlying disease. In addition, I have had several other symptoms including joint pain, debilitating fatigue, headache, migraines, IBS, high blood pressure ( I am 28 years old and have taught fitness classes for 10 years - eat well and exercise alot and have never had a problem with blood pressure), dizziness and blurred vision after exercise that lasts about 10 min. and goes away, extremities like fingers and toes turning white when cold, and other random symptoms. I have had several MRI's, lumbar punctures, bloodwork, and almost every other test imaginable - all showing no signs of any disease. I find it difficult to get any answers - and these symptoms are starting to get in the way of work as well as my life - any information or ideas would be helpful - thank you!

[DeeCee257]

Wow, it certainly sounds like an autoimmune disease, such as lupus or a mixed connective tissue disease. Have you had your ANA, sed rate, C-Reactive Protein checked?  Have you been seen by a Rheumatologist?  A lupus diagnosis can be elusive in the beginning - as your levels may fluctuate - so you have to get re- checked if symptoms persist. I have just about all the symptoms you describe- and I have a lupus like mixed connective tissue disease.   I was about your age when I started with my symptoms - cardiac.  It took 4 more years to get a diagnosis after symptoms began.
Good luck
Debbie

[belita]

Hi
I'm sorry to hear that your ill.
Have you been tested for Temporal Arteretis/Giant Cell? Allot of your symptoms are similar. If you type these words on internet you will be able to read about it. I have TA and have had it for one year.
Take Care Belita

[belita]

I just thought of this, post your symptoms on the MA section. A doctor replied to mine.
Good Luck