Swollen Lymph Nodes, and other symptoms

[NetGeek]

Hello all,



I am ne to this fourm and have some very worry some problems that I have been dealing with since July/August of this year.  First let me start out by telling you that I have had multiple surgeries on my low back and have lived in chronic pain for several years.  I am on pain meds for this.  I had a salivary gland removed in April of this year and this is what seems to have triggered all of my symptoms.  It started out as what I would say is localized swelling in the are of the glad removal and then I started to get pressure in my head. I went to the ER for the head pressue and they did a CT scan and found that there was nothing. no sinus infection, no bleeds nothing.  Good I suppose.  I then caught a cold that everyone in the house had so I thought nothing of it, then I started to notice a burning sensation in my neck on both sides. Lymph Nodes I thought and since I had a cold didn't think much of it.  I am now experiencing swollen glands all over my body, it started out on just the left side, except for the neck. (this is the side that I had the gland removed from) Now I am feeling lumps all over that seem to burn and are symmetrically dispursed throughout the body. I have been on antivirals, Pennicillin V for 4 weeks, Augmentin for 20 days, Singular, and Clairnex D.  After about a week on the antihistime the head pressure has gotten a bit better but the nodes are the same or worse. I keep getting nothing from my docs, blood work is normal, CT scans normal, MRI normal.  Iwent to see the doc the other day and they found or I found a lump in my cheek, same side

[NetGeek]

as the gland removal.  I am awaiting the results of that CT scan. I also have the neck stiffness, pain in the hands and arms although I have had pain in my arms and hands for years and have written it off as being Carpal Tunnel as I am a Network admin and was a Welder/Fitter/Mechanic for several yearsuntil the back injury.  I have pain under my arms, in my groin, under my ribcage, in my chest and also in my legs. My ENT told me that the lumps that I was feeling were Lymph Nodes but thought it was a residual infection or MONO, but did no blood work to confirm. I seen another doc and they did the blood work and all tests normal even the mono test.  I now have noticed lumps on the back of my knees.  Doc tells me that its a cyst same as the one in my cheek.  He also told me that he thought I had Dercum's Disease, which is a rare disease that occurs mostly in post menapausal obease women although it has been found in men.  There is no test for this disease and I feel that he gave me this as a DX, so he didn't have to do anything.  These lumps that I have found in the back of my knees are very large and are not fatty tumors as with Dercums.  I am very concerned but I am wondering if I should be as I am being told I am healthy although I feel like ****.  I have the night sweats as well as a low grade fever that waxes and wanes, never over 100 degrees. Any sugestions, there is no real history of cancer in the family or any other rare diseases. I have been fairly healthy all of my life except for all the lower back problems which do run in the family. I am at wits end here. Please anyone that has any suggestions I am willing to take them.



Clinton

Sorry for the long posts but I am really concerned.

[PlateletGal]

Did your physicians rule out diabetes, thyroid problems, autoimmune disorders and/or possible STD infections ?



Also... do you have trouble breathing ?

[NetGeek]

No trouble breathing, everything has been ruled out by my physicians say so.  Blood work is normal, HIV test is negative as well as other STD's.  I am a celabate man. There is no explaination from anyone on this.  I am wondering if it has something to do with the gland removal.  As I have a bad taste in my mouth as well and I have had several bad teeth lately, but from what all the docs tell me its not my mouth/teeth.  I have ringing in the ears at times also but its intermittent.

[lat67]

net geek,



I would suggest going to lymenet.com and checking out the symptom chart on lyme disease.  it is only a suggestion as to what might be ailing you.



Lesley

[PlateletGal]

Do you have inflammation ?

[NetGeek]

As for the Lymes disease I have already been tested for that as that was my thinking to all these problems but test has come back as a negative.



As for inflamation, just in the lymp Nodes or around the Lymph Nodes.  If you are asking if i have swollen legs or arms then the answer is no.  As I said my glands are enlarged as I can feel them and they feel like they are small round glands.  I have had swollen Lymph nodes before with strep but only in the neck so I know what they feel like.



As for my last doctors visit they found or actually I found a lump in my cheek that they say is a cyst and think that is what is causing the head pressure.  See tow diffrent ENT's as well as PCP on the 9th.  Will post more as I know it.  



I also wnat to mention the fact of the broken tooth and then a decrease in the pressure I feel in the head.  I had that tooth extrated today and low and be hold... My dentist gasp as she removed it, she said that the root of the tooth had grown into my sinuses.. HMMM now I wonder if this was the problem all along on the head pressure side of things.  Although I have been told by several people and dentists as well that dental problems rarely cause the enlarged Lymph nodes throughout the body as well as pressure in the head.  Let me know if ya all have any ideas and thanks to all that have read this and have posted comments.