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Lyme disease? docs can't diagnose for sure
by jessie2, Jul 07, 2007 12:00AM
Hi there,
I am a 29yo female originally from Long Island (high pop. of Lyme) now living in MA. I've experienced significant knee and hip pain since my early teens which I attributed to residual pain from a skiing injury at age 14. About 4 years ago, I began to have muscle fasiculations that came on strong over a period of a week throughout all muscle groups, and I still have them to this day. Two years ago I developed hyper sensitivity in both hands (especially after being in water for more than a few minutes (doing dishes, showering etc.) I have had significant fatigue over the last year accompanied by word recall issues, forgetfulness and general brain fog along with occasional balance issues. I have some days where my joint pain is worse and my ankles, feet and wrists are affected.
I have had 2 MRIs (with and without contrast) 3 years apart showing no abnormalities. I've had a neg. EMG study, a sleep study showing more active alpha waves, but nothing too out out of the ordinary, negative lumbar punctures, along with multiple blood tests. I recently had an EEG study which showed that I have "interuptions" in my brain activity every few minutes which explains my brain fog. I've seen a number of doctors and am now mostly followed by an ID specialist and a neurologist along with my Primary NP. (awaiting an appointment with Rheum) They think that so far, the best diagnosis is Lyme disease and based on my symptoms, and are guessing that I may have had it since my teens. I was on multiple antibiotics during HS and college for what they called "chronic strep throat" which they say could have made me sero-negative re: the Lyme tests. I have no scientific test giving me a definite Lyme diagnosis and I'm having a hard time with it. I'm on month three of Ceftin (antibiotic) to treat Lyme along with high doses of CoQ10, Biomega 3s, antioxidants and multivits. (I've also had some GI issues with all of these pills which has been a tough adjustment.) Still no changes in my symptoms after three months.
I'm worried that, if this is not Lyme and these antibiotics do nothing for me, that my symptoms will continue to get worse. I want to be sure I'm on the right path and that I'm not overlooking anything.
I guess I'm just wondering if anyone else has had a similar experience and am seeking advice as to other steps I can take to alleviate symptoms and get answers. (sorry this is so long!)
Thanks very much,
Jessie
I am a 29yo female originally from Long Island (high pop. of Lyme) now living in MA. I've experienced significant knee and hip pain since my early teens which I attributed to residual pain from a skiing injury at age 14. About 4 years ago, I began to have muscle fasiculations that came on strong over a period of a week throughout all muscle groups, and I still have them to this day. Two years ago I developed hyper sensitivity in both hands (especially after being in water for more than a few minutes (doing dishes, showering etc.) I have had significant fatigue over the last year accompanied by word recall issues, forgetfulness and general brain fog along with occasional balance issues. I have some days where my joint pain is worse and my ankles, feet and wrists are affected.
I have had 2 MRIs (with and without contrast) 3 years apart showing no abnormalities. I've had a neg. EMG study, a sleep study showing more active alpha waves, but nothing too out out of the ordinary, negative lumbar punctures, along with multiple blood tests. I recently had an EEG study which showed that I have "interuptions" in my brain activity every few minutes which explains my brain fog. I've seen a number of doctors and am now mostly followed by an ID specialist and a neurologist along with my Primary NP. (awaiting an appointment with Rheum) They think that so far, the best diagnosis is Lyme disease and based on my symptoms, and are guessing that I may have had it since my teens. I was on multiple antibiotics during HS and college for what they called "chronic strep throat" which they say could have made me sero-negative re: the Lyme tests. I have no scientific test giving me a definite Lyme diagnosis and I'm having a hard time with it. I'm on month three of Ceftin (antibiotic) to treat Lyme along with high doses of CoQ10, Biomega 3s, antioxidants and multivits. (I've also had some GI issues with all of these pills which has been a tough adjustment.) Still no changes in my symptoms after three months.
I'm worried that, if this is not Lyme and these antibiotics do nothing for me, that my symptoms will continue to get worse. I want to be sure I'm on the right path and that I'm not overlooking anything.
I guess I'm just wondering if anyone else has had a similar experience and am seeking advice as to other steps I can take to alleviate symptoms and get answers. (sorry this is so long!)
Thanks very much,
Jessie
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