chronic flank and groin pain as well as abdomen.

[wils2931]

I had three kidney stones in the past three years.  Ever since I had the last one removed , which was approximately one and half years ago I have been constantly in pain.  It felt is if I had another Kidney Stone.  When I returned to my Uroligist approximately 2 months after the removal of the stone , he brushed it off by stating that you cannot get a kidney stone that fast.  I have been suffering. I been to the hospital numerous times 10 to 15 times to be excact. Every visit resulted in having a Cat- Scan done.  They would not find a stone.  However , on one occassion I was told that I have a minor case of Hydronephrosis on the right side.  Where the stones came from in the past.  On some visists I would have blood in the urine . On some visists I would not.  When I come into the emergency room due to the pain I can overhear the nurses and doctors saying Here he is again.  It really hurt my feelings.  They would just go through the motions Cat-Scan , Pain Med. send me home.  I have been to two uriologist.  They area considered to the be the best.  They seem to dismiss the hydronephrosis and blood in the urine. Since they don't see a kidney stone they said that I'm okay.  I was tested for UTI the results were negative. Just recently my Primary Care Physician , who had been very helpfull and fustrated, took a urine sample to be tested for crystals.  I'm afraid that the results will be negative and that I would , once again look like I'm crazy.  I forgot to mention the severe naseau that comes with the episodes(That's what I named the bouts of pain).  At first the pain would come and go but lately the pain is 24 hours a day.  I took pain meds but that did not seem to completely take the pain away.  I stop taking the med. to see if the pain would dissappear and also to avoid addiciton.  But the pain is to tough to handle.  I try to hide the pain from my family but to no avail.  I'm desperate and need help. I cannot go to get any more test. I'm tired of them. What do I do. Is there a Doctor who delt with the situation before?  If so please help.



                                     Thank you in andvance,



                                                Wils2931

[Kevin Pho, MD]

With the multiple negatice CT scans, you may want to consider alternative diagnoses other than stones.  One possibility would include interstitial cystitis (IC). IC refers to a clinical syndrome characterized by chronic urinary urgency/frequency and/or pelvic pain. In the past, it was considered to be a relatively rare problem that affected only the bladder. More recently, IC has been viewed as a common disorder that appears to affect tissues throughout the lower urinary tract.



The intravesical Potassium Sensitivity Test (PST) tests for abnormal urothelial permeability, which is present in many individuals who have IC. The test can be administered by a nurse in the clinician's office - this can be considered by your personal physician.



There is a medication call Elmiron that can aid in repair or restoration of the bladder epithelium if IC is present.



Followup with your personal physician is essential.



This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.



Thanks,

Kevin, M.D.



Bibliography:

Parsons.  Interstitial cystitis.  UptoDate, 2004.

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