Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
This answer is not intended as and does not substitute for medical advice - the information presented is for patientKidney diet - dialysis patients education only. Please see your personal physician for further evaluation of your individual case.
Unfortunately for me, after my surgery in 1997, we had to move from VA to CA and, once I got here, the Drs. were much less receptive to my problem because they either 1) didn't know what heck I was talking about; 2) didn't believe I knew what I was talking about; 3) thought I was "drug seeking"; 4) thought I was "Dr. Shopping"; or 5) were insulted when I tried to educate them a bit. So, because I kept getting this "it's all in your head" "you just want the meds" "threre is nothing wrong with you psychiatry can't fix", etc. it caused me to doubt myself and I sought a second opinion from the University of Kansas Medical Center, Dr. Norton Greenberger, GI Specializing in pancreatic disorders and malfunctions (he was recommended by a Dr. friend at Mayo Clinic). When I arrived, he asked me what my goal was for this visit and I said "I just want to know, is it all in my head?" He laughed and said he doubted it. He performed the ERCP and the MRCP and told me, "No, it's all in your pancreas". He also said thet I have small ductal disease and biliary insufficiency in addition to the divisium. He explained how, when we eat, the stomach puts out an enzyme to kick start the pancreas to produce enzymes to break down food, this causes the pancreas to try to get enough out so the food can be digested and the nutrients taken out, but the damaged pancreas can't get enough out at a time, so it tries and tries and, when it can't the stomach will send another message, which causes the pancreas to try harder, and this cycle continues. Unfortunately, there are not a lot of options for those of who have this problem. The least invasive is diet modification, exercise and synthethic pancreatic enzymes taken with food. The next is to have done what I had done with the connecting the ducts, etc. Then you have partial or complete pancreatectomy (making you a brittle diabetic the rest of your very shortened life), and then there's transplant. One thing I still have problems with is getting Drs. to believe I have this, because I can't afford the $50 basic search fee and the $.86/page copying fee, I cannot request my request my records from either my diagnosing Hospital and MD nor my secondary opinion Dr. and Hospital. So, now we are back to square one with the same "it's all in your head" comments, only now that I HAVE my law degree and License in CA to practice, they ARE a little more subtle about it. Find yoursefl an Ombudsman, preferably a patient ombudsman who will lobby for your best interests as a patient. Because, believe me, one you hit the status as a chronic pain patient, your lobbying days for yourself are over, you will be stripped of all persuasive power and looked at as a hysterical whiny little thing, no matter how rational, no matter how true what you are saying is, there is no power when you are a patient. Beyond that, try the enzymes, don't eat very much fat, don't eat a lot in one sitting (I usually space it out through the day - like five very small meals (snack size)), don't drink cranberry or orange juice and don't eat them either, cut back on the meat in your diet and make sure you ABSOLUTELY DO NOT DRINK A DROP OF ALCOHOL. You also shoul ask you primary care physician to do a pancreatic test to determine if it is functioning o.k. This is not that bad a test, you do have to drink some stuff that doesn't taste great, but ut's only about a cup or so and then have a series of blood draws. I hope that this may help in a small way. I'm not a Dr., but after living with this for 11 years and researching it for almost as long, I can speak for my experience.
Peace and Love Be With You