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neurocardiogenic syncope and pregnancy
by beth27, Jul 31, 2007 02:57PM
Hi my name is Beth. I was diagnosed with NCS when I was 20. I am now 27. I can't stand for more than a couple minutes without having to sit down. I was taking Proamatine and Florinef, which helped at first but gradually I was getting worse and worse. The fatigue was horrible, I couldn't do anything during the day but sleep. Then I started having shortness of breath and chest pain everyday associated with NCS. No doctor has been able to help. I finally found something that is helping alot. But I'm still not cured of this. It's a natural supplement.... called Ambrotose, it has completely alleviated the chest pain and shortness of breath as long as I take it everyday. And another product called PLUS which supports the endocrine system which is the root problem of this disorder... the adrenal glands aren't functioning correctly, so this helps balance it out. It helps tackle the root prob and not just the symptoms like prescription meds. I want to know what has helped others and has anyone gotten pregnant with this condition and can your body handle a pregnancy with NCS? What did you experience? Does it make you worse? How did you handle childbirth too?
Member Comments
by ajcscarberry, Jan 17, 2008 10:40PM
To: Beth
Hello Beth, My name is Amber. I was diagnosed with NCS when i was in the Army. I know exactly what you are going through. I did get pregnant (despite my cardiologist views) and did have a beautiful daughter. Now there were complications. I couldn't really take a large dose of medicine and it makes my syncope 4 times worse. I always had the fear that I would faint and land on my side and hurt the baby. First thing they will did is label me a high risk pregnancy and i delivered in Maternal Fetal Medicine in University of Colorado Hosp. in Denver. They were a great team. They really suggested that I get an epideral to keep me calm and to control the pain from exacerbating my condition. My heart rate and blood pressure had some problems but both of us were able to pull through. My doctor and OB now tell me that I really can't take a risk again and that I should be blessed with the one i have so i won't be having anymore (unless i'm stubborn enough to not listen again). I hope this answered your questions.
by idasmommy, Mar 05, 2008 09:57AM
To: Beth
I was diagnosed with NCS when I was 16 and havent fainted since then But I know my limits. I got pregnant when I was 24 and have an 18 month old now. MY NCS got 100 times worse during pregnancy. I spent many times in the hospital with IV's because my blood pressure would get so low. I probably shouldnt have another one but my husband and I are going to try the end of the summer. The labor and delivery I was really worried about but that was the easy part. I did get dizzy towards the end of pushing but overall I did fine. My only advice is to make sure you are well hydrated drink drink drink drink drink. It was hard for me because I was so nauseous all the time but keeping hydrated is the best thing for u.
by AMYCHRIS28, Mar 25, 2008 03:58PM
To: BETH
I AM 29 YRS OLD AND I RECENTLY FOUND OUT THAT I HAVE NCS. I HAVE 3 CHILDREN AND DURNING ALL THREE PREGNECY I PASSED OUT AND HAD IVS FOR THE FIRST 5 MONTHS OF ALL PREGNECY.I HAVE BEEN DEALING WITH NCS FOR 10 TEARS NOW BUT NEVER SEEN A DOCTOR FOR IT TIL JUST RECENTLY.MY OLDEST WHICH IS 11 YRS OLD HELPED ME ALOT WHEN I WOULD PASS OUT. I THINK WITH THE RIGHT DOCTOR EVERYTHING SHOULD GO FINE.GOOD LUCK!
by rubyjean, Apr 09, 2008 05:53PM
To: Beth
I was diagnosed with NCS after I had my daughter. I have had it all my life (obviously), but only until my 20's have I experienced the symptoms of chest pain and shortness in breath. My pregnancy though was symptom-free. I felt my best when I was pregnant. This is because you have "more blood" when you are pregnant, therefore your blood pressure increases naturally during that time. You HAVE to maintain adequate hydration at all times. The only thing I do at this point, is take salt tablets. Could you tell me about those meds that you say help you the most?? I would be interested in trying them. Good luck to you.
by mariontara, Apr 28, 2008 02:54PM
To: Beth
I was diagnosed with NCS when I was 23. I have never taken the beta-blockers that were prescribed to me because I know how to prevent the "episodes". For me, getting at least 7 hours of sleep, staying well hydrated, and eating meals on time (I have hypoglycemia also) will prevent the episodes. Now I am 27 and pregnant. I also had major low blood pressure issues during the first 4 months of my pregnancy. The issues resulted in my asking for a "medical/maternity" leave from work, hospital visits (IV), and working through dehydration all of the time. I am 33 weeks along now and everything is going well though!!! I was wondering if anyone would recommend the epidural during labor...considering that it lowers blood pressure...
by mariontara, Apr 28, 2008 03:02PM
To: ajcscarberry
Thank you for your comment. I was wondering if you could elaborate on the statement, "my heart rate and blood pressure had some problems". I think it is interesting that the medical staff thought it would be a good idea for you to have an epidural since one of the most common risk factors is lowering blood pressure. Would you please explain this more to me?
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