Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Back & Neck Community
This patient support community is for discussions relating to back and neck problems, exercise, pain, sleeping, and physical therapy.
Scoliosis, Marfan Syndrome and Spinal Fusion Surgery
by the Ashfire, Aug 28, 2007 02:28AM
Hello. I am in need of some advice/info regarding my Spinal Fusion Surgery I will be undergoing in about a month from now.
First off, I have a very unusual case and will try to make it's description as brief as possible. I am 30 years old and have a rare condition called Swyer-James Syndrome. When I was 5 years old I got a virus that brought me very close to death and collapsed my right lung. The lung is still collapsed to this day and my heart has moved to the opposite side of my chest as a result. In addition to that, my left lung has hyper-inflated to double it's size in order to fill the gap of the collapsed lung. I have a 39% lung capacity as of now and a 45 degree scoliosis curve in my spine as well. The cherry on the top of this cake is I was recently informed that I probably have Marfan Syndrome as well (spontaneous pneumothorax, scoliosis, tall & thin figure with disproportionate arms and legs compared to the torso, pectus excavatum, severe eye problems, etc...)
Have you got all of that so far? Good... Now, I would like to hear from any doctors or people with any experience with what I've mentioned above.
As a bonus question, I'd like to know if you know anyone that has died from their Spinal Fusion Surgery and what were the complications that caused it?
I thank you in advance for your help and concern.
Sincerely,
Some guy with a really screwed up body....
First off, I have a very unusual case and will try to make it's description as brief as possible. I am 30 years old and have a rare condition called Swyer-James Syndrome. When I was 5 years old I got a virus that brought me very close to death and collapsed my right lung. The lung is still collapsed to this day and my heart has moved to the opposite side of my chest as a result. In addition to that, my left lung has hyper-inflated to double it's size in order to fill the gap of the collapsed lung. I have a 39% lung capacity as of now and a 45 degree scoliosis curve in my spine as well. The cherry on the top of this cake is I was recently informed that I probably have Marfan Syndrome as well (spontaneous pneumothorax, scoliosis, tall & thin figure with disproportionate arms and legs compared to the torso, pectus excavatum, severe eye problems, etc...)
Have you got all of that so far? Good... Now, I would like to hear from any doctors or people with any experience with what I've mentioned above.
As a bonus question, I'd like to know if you know anyone that has died from their Spinal Fusion Surgery and what were the complications that caused it?
I thank you in advance for your help and concern.
Sincerely,
Some guy with a really screwed up body....
Member Comments (3)
by Lauren<3, Sep 03, 2007 01:11PM
To: the Ashfire
i was just diagnosed with scoliosis. its not THAT bad but sorry guy, im lost with ur story
by Lauren<3, Sep 03, 2007 01:12PM
To: the Ashfire
by Lauren<3, Sep 03, 2007 01:14PM
To: the Ashfire
omg!! i am so sorry, i didnt read that you have a 45 degrees curvature. i have a 19 degree curvature. i feel so much for you!! and NO i dont think anyoe has die form spinal fusion surgery!! DoNT WORRY. everything will go fine! good luck
Post Comment
