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Neurology (Expert Forum)
support/information
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury
support/information
by taz, Mar 14, 2001 12:00AM
Hi.
I am looking for information for symptons or signs of the final
stages of this disease. My ex husband has this horrible disease. I have 3 children that I will have to have tested. I need to know how to explain this to them and also help them to understand what their father is going through. He seems to be in denial. He sleeps all the time and does not wish to see anyoune. I don't know if he is getting the proper care. He is on medication for depression and the involuntary movements. He has really gone down hill in the last 2 months. He is 46 years of age and was diagnosed about a year and a half ago. Any information would be appreciated. When should I have the children tested. They are 9 10 and 15 year old.
Thankyou
I am looking for information for symptons or signs of the final
stages of this disease. My ex husband has this horrible disease. I have 3 children that I will have to have tested. I need to know how to explain this to them and also help them to understand what their father is going through. He seems to be in denial. He sleeps all the time and does not wish to see anyoune. I don't know if he is getting the proper care. He is on medication for depression and the involuntary movements. He has really gone down hill in the last 2 months. He is 46 years of age and was diagnosed about a year and a half ago. Any information would be appreciated. When should I have the children tested. They are 9 10 and 15 year old.
Thankyou
Doctor's Answer
by CCF Neuro[P]-M.D.-RPS, Mar 14, 2001 12:00AM
Dear Taz:
Sorry to hear about your husband. Unfortunately, this is not a good disease to have, and the eventual outcome is mortality. Much more information can be found on their website and I would check it out. Wether to get your children tested is difficult to say. I would evaluate whether they could handle the news. You already know that there is a 50% chance of getting the disease. They need to live life, whether they have the disease or not. Sometimes we think that some children may not be able to handle the future if the disease is known. Only you and they can make that decision.
Sincerely,
CCF Neuro MD
Sorry to hear about your husband. Unfortunately, this is not a good disease to have, and the eventual outcome is mortality. Much more information can be found on their website and I would check it out. Wether to get your children tested is difficult to say. I would evaluate whether they could handle the news. You already know that there is a 50% chance of getting the disease. They need to live life, whether they have the disease or not. Sometimes we think that some children may not be able to handle the future if the disease is known. Only you and they can make that decision.
Sincerely,
CCF Neuro MD
Best Wishes to you and again I am truely sorry about your husbands illness..Betty Powell