Your case is very complex, and you have been evaluated at a very good medical center. If you are looking for a second opinion, perhaps traveling to another well known academic center, such as the Cleveland Clinic, the Mayo Clinic, and University of San Franscico to name a few would be reasonable. I do not think I could provide any more help. Good luck.
thank you terri. i read you comment the thing is i donot have
any pain accept when i am sleep i feel nerve shot that my hands
or my legs jump and i get headache . the main complain is i do
not feel any strech of muscle it feels like that my muscles are
not connected with each other.and the tendons are weak and it is like that the realation between muscles and bones are
not well.when i walk i have to watch my legs and hans because
i donot feel static feet back and the contraction of the muscle.
i hope you get feel better and get cured. my email ad is htsb_27***@**** and my name is hyden.
thank you
i forgot year 96 EMG showed myotonic dischrges ,NCV normal,and
muscle biopsy showed denervation without reinervation. year 99
EMG showed polyphasic, NCV slow right midean nerve. year 2000
muscle biopsy normal.MRI of brain normal .MRI of cervical spin 1mm boldge c2c3 1.5mm c3c4 2mm c4c5 and 2mm c5c6 otherwise normal. blood test IGM low 20/60 in several years. spinal tab
normal two times. heavy metal urine test normal.
I read your comment on your medical problem. YOu might have the same thing that I have and that is called RST (Reflex Sympathic
Dystrophy). It is a painful nerve disease and there is no cure. If your skin turned red and felt hot and sensitive to the touch after your injury then you probably have it. You need to go to a pain doctor. I got it from a sprain to my left ankle and it just traveled up the left side of my body. If you catch the disease within 6 months of the onset it can be reversed. That is what I was told anyway. I don't know how they do it though. I have been going to a Spine and Headache Pain doctor, and have been going to him for over 3 yeas now. I have pain now from my lower back down to my ankle and it will not go away. I have had several epidural injections, facet blocks, heat procedures, etc. I am also on several pain medications too. I will have to live with this pain for the rest of my life. I also have gone to a Accupuncturist and she helped me get rid of the pain from my shoulder and arm. That might be a good thing to do in your case. Anyway let me know what you find out. My name is Terri Airey and my email is ***@****.. Good Luck