lil tiny pin pricks, thousands of them all at once in waves and wavesPLEASE HELP - Neurology

by dadio, Oct 27, 2005 12:00AM

Hi there, its really good to hear that there are people out there with the same condition as me. I was diagnosed recently after 4 years struggling with small fibre neuropathy which they can find no cause for. It is so debilitating - started in my feet but spread now to both legs and hips now hands. Can you tell me if any form of exercise makes it worse? Even walking drives me crazy - me feet burn and prickle so bad I have to plunge them into cold water for any kind of relief. The neurologist has told me it will probably be slowly progressive but thats ok if you're 90 but I'm only 46! May I ask how old you are? The only course of action (so Im told) is drugs like neurontin which make me really ill so God help me - I have no idea where to turn. I would really like to keep in touch and see if you get any better answers. Love Pauline

by LDMAN60119, Oct 28, 2005 12:00AM

Go to www.egoscue.com. Trust me. If you can get to a clinic go. Or you can call his radio show live on saturadys 12:00 est. You don't need those drugs

by rhschumaker, Oct 29, 2005 12:00AM

My husband has had the same symptoms for about the past three months. When his body temp rises, the sensation of pins and needles radiates all across his back, arms, etc. We thought maybe it had to do with a change in detergent, etc. but nothing has worked. He's 36, in good health, works out daily. There is a history of diabetes in his family (his uncle). Could this in some way be related? He hasn't been in to see our physician yet but will be going in this week. Is this a debillatating condition? Reading the hoplessness of many of you has scared me. Any information you can send my way would be great. Thank you!

by nosol, Oct 29, 2005 12:00AM

Hello.

Wow, what a debilitating painful problem. Looking up heat-induced neuropathy -- a lot of diabetic neuropathy links come up. Have you been tested for diabetes? While Neurontin is, in fact, a great drug for this type of neuropathy -- it is not always well tolerated. Lyrica, on the other hand, has been approved for painful diabetic neuropathies (and there are MANY presentations of it) and, perhaps, should be given a try.

Good luck to all.

ON

by spd184, Oct 30, 2005 12:00AM

I am a very healthy 46 yr old female. I have been dealing with the same symptons that are described here...for about 6yrs. The pain in my arms at time is so bad that I wish I could have a car run them over...Other times it is just a very low level burning,pin and needles feeling (100000 of burning pins!) I have seen a nureologist...had MRI..and no one can tell me what is the matter..I stopped going to the Dr's because I was tired of listening to myself whine! I did at one point develop blisters all over my back and thought I had shingles...but those test were also inconclusive, Thanks for listening

by dadio, Oct 31, 2005 12:00AM

To: SPD184

Hi I have the same problem and am also a 46 year old female but have been diagnosed with small fibre neuropathy. This has taken 4 years as all the tests kept coming up negative. Tell me, have you had the heat sensitive test? This will show up any damage to the small fibre nerves and these are the ones that cause pain and tingling and burning. Also are your symptoms worse with activity or heat of any kind? Do keep in touch as it feels good to know there are others out there in the same boat!

by jlcartoon, Oct 31, 2005 12:00AM

Hello everyone.

I am sorry to hear all of your stories�

Nonetheless, it seems like my situation is different from all of the stories above.

For me, I have no other symptoms other than the prickling sensation I have mentioned above, along with absence of sweat and sinus congestion problem. In consequence, my prickling feeling goes away when I cool my body by spraying water all over my body.

This is very confusing for me also, since the �prickling� feeling I am describing could be very similar to of someone with �pins and needles�� however, although I could be wrong, at this point I strongly think what I have is CHOLINERGIC URTICARIA.

I found that many doctors are not familiar with this illness. If you are someone who is suffering from similar condition as mine, please look into cholinergic urticaria.

Please continue to read and write on this thread of your updates as I will also.

Best of luck to all you guys..

by spd184, Nov 02, 2005 12:00AM

TO DADIO...THANKS FOR THE REPLY. I HAVE JUST SEEN A NEUROLGIST YESTERDAY...STILL NO ANSWERS...AND HE HAS PUT ME ON NURONTIN(SPELLING ISNT RIGHT) I HAVE HAD THIS FOR ABOUT 5 YEARS..I HAVE LOST TRACK OF TIME..AND AM SO TIRED OF COMPLAINING ABOUT IT. IT SEEMS TO COME AND GO WITH NOTHING MAKING WORSE. aT FIRST i THOUGHT MAYBE IT WAS WARM WEATHER...THEN IT BEGAN WHEN IT WAS COLD. FIRST IT WAS ONE ARM... NOW BOTH..AND I FEEL THE PIN PRICKS ACROSS MY BACK..

ANY OF THIS SOUND FAMILIAR? PLEASE FEEL FREE TO EMAIL ME AT

***@**** FOR THE REPLY.!

by DREXEL, Nov 05, 2005 12:00AM

I have a similar problem, with waves of pins and pricks in my lower legs and arms. Sometimes the waves also hit my back, chest and shoulders. I have had this problem for years, but it has been getting progressively worse. This summer, due to the humidity and heat it was extremely burdemsome. My problem typically impacts me:

1) when I move from a climate controlled environment to a humid / hot environment - it appears to be moisture or temperature rooted

2) when i come out of the shower - my batting average is 100% (with the one exception noted below). during my shower i am absolutely fine, but as soon as i get out for a period of somewhere between 20 - 60 minutes I am beyond myself with pins and needles.

I have seen dermatologysts, doctors, etc.. with no luck. I have tried:(i)antiantihistamines; (ii) tylenol, (iii) water alergy and other topical allergy creams, etc.. and nothing seems to work. I have also been tested for what i think are the obvious concerns of diabetes and thyroid problems. I have also been tested by an allergist on almost everything on earth - and am generally very non-allegic. I am generally healthy but approx. 30lbs overweight and 40 yr old male. I cannot recall how long i have had this problem (many years), but it has come in waves, and generally worse in the summer when the heat and humidity are at their highest. This past year has been by far the absolute worse, I believe because I have spent more time in a hot and humid climate this summer, but not sure. I also agree that if I have a night of drinking, its almost certainly worse the next morning. I typically feel very stressed out and depressed (emotionally) following a night of drinking. General day to day stress also impacts it more. I wondered for a time whether it was stress or the associated impact of more coffee and less sleep that resulted in the worsening conditions? While I don't have a clear answer, I can tell you I stopped my caffein intake for approximately 2 weeks with no real relief.

I find working out actually helps me. During the first few minutes of a run, I start to feel the priking, but by the time I am into a 20 minute run, it goes away. I can then take a shower without any symptoms (this is the only time I can take a shower without symptoms immediately following).

My next plan of attack is to see if I work out and lose a lot of weight if that would help, although based on your condition, I am not holding out much hope.

The only link I can think of to your particular condition is a severe car accident I suffered from approximately 20 years ago, where I cracked multiple vertebrae and my pelvis (in 3 locations). I also do have a generally weak back and occasional pain from sitting at a desk. For the life of me I cannot recall when my problems began, but wonder if by chance a latent vertebrae or spinal cord complication (in combination with more recent weight gain) could be at the root of the problem? The only other problem which I can link to this is with my stomach. I also have a generally weak stomach and suffered for a hereditary disease (Celiac) which makes an indiviual intolerant to glutens. While the gluten intollerance hasn't impacted me in years, I still often get an upset stomach with many foods, including fish. I often find that my pins/pricks are associated with a period of upset stomach - but this again could be all tied in with stress

Your Name:
Your Email:
Friend's Email:
Message:

	Enter the code shown:



	Leave a Note Send Message Add as Friend jlcartoon Member since Sep 2005