Hi,
I had an op to remove a
borderlineBorderline personality disorder Phyllodes tumour exactly a year ago & was told I would have a mammogram every 18 months & a
physicalPhysical activity
Physical exam frequency
Physical examination exam every 6 months. I had the latter
backBack pain - low
Back strain treatment in June & was given the all
clearClear by design
Clear eyes
Clear eyes acr
Clear eyes clr. Whilst I was due a mammogram after next Xmas I have now been called to attend for one in Oct because of
routineRoutine sputum culture screening as I am now 50. I've been told it is OK to attend earlier than planned but my concerns are as follows:-
I had the tumour removed but chose not to have a 2nd op to remove a rim of good tissue/margin as I had read that a 2cm margin was preferable, but my consultant said it would only be a slither. I felt he was just doing this to satisfy his own piece of mind & I didn't see the point as he couldn't say that it would stop it from recurring. So I decided I couldn't go through the process of a 2nd op & prefer to take the risk. I have since changed my consultant. The tumour (4cm) was of a "pushing" type & came out easily. I only have a slight
scarKeloid scar
Miscarriage
Scar revision
Scarlet fever
Signs of scarlet fever but will the radiographer be able to tell the difference between
scarKeloid scar
Miscarriage
Scar revision
Scarlet fever
Signs of scarlet fever tissue & anything more sinister? The consultant I have now says I have a little bit of
scarKeloid scar
Miscarriage
Scar revision
Scarlet fever
Signs of scarlet fever tissue.
I may have to wait 4 weeks for my results after the mammogram but I am already worried
sickSick sinus syndrome that it will be interpreted wrongly. Of course I know that prevention is better than cure but I was told that if anything "not right" showed up at any time, the next step was a
biopsyAdrenal gland biopsy
Biopsy - biliary tract
Biopsy - polyps
Biopsy catheter
Bladder biopsy
Bone biopsy
Bone lesion biopsy
Bone marrow biopsy
Breast biopsy
Breast lump removal
Bronchoscopy with transbronchial biopsy again. I don't want to go through anything unnecessarily.
This will be my first mammogram since the operation. I am in the UK & they don't seem to take a mammogram soon after the operation to compare with later. There is only the one I had taken when the actual tumour was present. I may phone the hospital nearer the time (Oct 18th) to give them my concerns, it's just that I didn't find them very helpful last year when I had the tumour & I had to resort to the internet to get information. They don't seem to want to admit that Phyllodes tumours are quite rare.
I will try & keep calm & not think the worst. I cannot feel any lumps myself except for the small scar tissue which I have got used to. I know though that it is early days as regards to this type of tumour recurring.
Thank you again.