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ALS Community

This patient support community is for discussions relating to Amyotrophic Lateral Sclerosis (ALS).
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im so scared this is als

by pepsi_coke, Sep 29, 2007 05:17PM
Hi im 15 years old and about 3 weeks ago these strange things started to happen first,i got a veyr very bad headache for about 4 days i never have headaches so my mom took me to the er meanwhile during the headaches i noticed my arms,legs,neck jsut my whole body kept jerking but it didnt really worry me the dr. in the ER said its just a migrane and said get some rest and sent me home about 2 days later the headache went away but the jerking twithing got worse..alone with a stiff neck..i couldnt stand it it seems like my whole body feels like it throwing itslef if u no what i mean but the bad thing is..no one else seems to see it and when i jerk i usually try move with it to make it not noticable so i begged my mom to take me to the dr.again so she did he said that i could just be a twitch and that if it didnt go away in a few days call the neuro. so i didnt go away and i did ..so he did a exam and he said theres no reason to think anythings wrong but hes sending me for a eeg and a cat scan but that id have to wait a few weeks..sinse then the jerking tiwtching..im not sure how to describe it has not stopped its all day everyday i still have a stiff neck and now i have dizzyness i am very very tired i feel like im dieing and all i can think is that i have als or ms or somehting very very bad..and that a cat scan is not going to show something like that my mom sais that if the test showing nothing im not going to see anyone else..im so misserable and dont no what else to do..my family thinks im makeing this up...i cant stand the jerking anymore..can someone tell me what this could be??
Member Comments (3)

by 12345678910, Sep 30, 2007 03:13PM
I'm not an expert, so take it realizing a may be completely wrong.

I don't know, stress, anxiety. It's amazing what the mind can do if you force it to believe something. That being said, I don't think anything is as stressful as someone not beliveing you about your symptoms.

If it doesn't go away, ask your parents to send you to a shrink, and they will be able to see whether it's in your mind or not. Then if it's not, you have a doctor on your side helping you convince your parents that you need to follow up with another dr.

I bet it is a normal thing that will remedy itself, and you will be fine.

by maydas2002, Oct 23, 2007 10:37AM
To: pepsie_coke
I have been dealing lately with many jerkings and twitches all over but mostly in my hands and legs. What I have done that has helped me a lot is to take something called Myocalm. It contains Magnesium and helps me with the twitchings a lot. Talk to your doctor and ask him about taking some magnesium to calm your twitches. Good luck I hope you are feeling better.

by hoy, Dec 08, 2007 07:44PM
I wonder if you drink alot or pop or energy drinks. Stop. Especially diet pop (artificial sugar is a neurotoxin)and do not ever drink energy drinks. try a calcuim magnesium suppliment as well 5HTP suppliment. Hope it helps.
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