Burning Sensations

[Super_sally888]

Hi,

for people here who have sensory issues, please describe what it feels like to you.  I am having burning sensations.  These are pretty consistent in places (lower legs, back of left arm, trunk from time to time), but ebb and wane for the coverage in other areas.

Today have new spots: my right ear feels like it has warm/hot wax poured into it.  Back of my neck feels like a severe case of sunburn, my cheeks feel like I am radiating, the sides of my tongue feel hot!  (but to touch everything is just normal warm)...   No other new stuff, except the feeling so tired at the moment....

Is this possible to feel like this????  (I am not diagnosed with anything....)...

Am so weirded out! Don't know if I can trust what I am feeling!!!!

S

[risnerrose]

I am currently dealing with "hot feet".  I feel like I've rubbed aspercreme on them, because at times I have trouble determining if they are hot or cold.  I have also had spots of heat or have felt like I had cold water splattered or poured on me.  This feels so "real" that I've looked around to see who the culprit was, only to realize it was just a nerve thing.  Several areas that were tingling this summer have now changed to a heat sensation.  

We are most definitely wired weird :-)

Sherry

[yorkieville]

Hi, Sally.

  I have had burning sensations for 3 & 1/2 years. It began in my legs, top of feet, thighs. Some days it feels like a bad sunburn, other days it feels like a blowtorch, and the worst days it feels like a trillion bees stinging me. It progressed to my spine last Dec., and the nerves sting. Yes, you can trust what you are feeling. Push for a diagnosis. It only gets worse without treatment.

  I'm so sorry this is happening to you. I empathize.

  Sheila

[mokibear]

I too have had the burning in my legs. Definitely felt like a blow torch on them. My face gets a hot burning sensation as well but I don't have a temp. Just recently I had an incredible burning in my ears but it came with extreme pain in my neck.  The burning seems to come and go and I usually get it when I am experiencing some other symptom in an extreme state. The burning itself doesn't seem to last long and will sometimes come and go during one session.

Welcome to the world of weirdness!
Moki

[Jenny Wren]

I have had burning sensations for 8 years now.  I have not yet been diagnosed with anything.  All my brain and spine MRIs are normal, no lesions.  I refuse a LP.  My neuro says maybe small fiber neuropathy, I dunno.  It comes and goes.  These weird sensory issues started right after being sick for three months with nausea and insomnia.  Neuro says maybe a post viral thing also.  Hope you feel better.  Have you tried Neurontin or Lyrica, its supposed to help some.  

[JI Jo]

Oh my gosh! I'm so sorry....I have no idea what happened with that...lol

There is a song like that though

[Super_sally888]

Thanks, nice to know I am not alone.... have a sinus infection (cold at the moment) which seems to have made things worse..... I can live with this - if only I wasn't so tired....

Feels like I've been rubbed with too much methyl salicylate (bengay, dencorub etc)...
My tongue is burning at the moment and my lip.... along with a spot on my thigh... and on my shoulder, and a few other spots....... and so the weirdness goes on... :(

[veronica332]

hi, im also having burning sensations in my thighs it's been going on for vabout three years and now my face has it it's come with severe pain this month i was dianosed with fibromyalgia an also have osetoarthritis.

[Akcowboy]

I tend to get it along the top of my thighs for the most part but on the other end I do tend to get and hot spot in my feet as a peace of metal burns though my shoes when I'm cutting metal with the torch lol

But I tend too get an icy feelings in my toes even when I were my bunny boots, I can feel my toes are freezing but when I remove them my feet are just sweaty and warm and trust me you don't want to be around when I take them off

  Cowboy

[slightlybroken]

I'm not currently DX either. I'll get a burning sensation on my left side (that's the side that's messed up). The sensation will be in my parts of my left arm and left thigh. The burning sensation reminds me of when you exercise. It's a deep muscle burning. Then I'll get patches of numbness and weakness soon after.

I've also had the burning sensation feel similiar to when something is really cold. My left arm and leg will feel cold to me, but to other people they are the same temperature.

[Rena705]

I have a feeling in my heels that I equate to having someone stab hot knitting needles in them and it hurt's like he**!  I have also had burning in muscles in my thigh after a severe muscle spasm and this moved down to below my knee eventually and has now disappeared.

Rena

[trueblue06]

Hi Sally and all members here
I have just found this forum and can I say "thank God I found it."
I live in Australia and am a 50 yr old female.
I have been going through the very long process of an unconfirmed diagnosis now for the past 3 years. Nobody can make their mind up what is wrong with me, the opinion just keeps changing...yes it is MS, no it isn't, yes it is, no it isn't...........aaahhhh!

I have had 2 MRI's both with contrast a year apart and both showed multiple scattered lesions of different sizes and shapes and in both hemispheres of my brain but mostly adjacent to the corpus callosum with no changes within that time frame.
I have also had a lumbar puncture, (negative) and a spinal MRI (also negative). I have had multiple blood tests all negative, no B12 deficiency, Lupus, Lyme, Thyroid problems. Nerve tests, visual tests, all normal.
I have pursued a second opinion and didn't get any sense out of that neuro either both saying "they are not sure." The 2nd neuro did say I have no active lesions at present,
how reassuring!

I asked my Dr to send me off to a psychologist in case I am going loopy and because
I am getting nowhere fast with my diagnosis and I feel that my symptoms are increasing and my disability is also.
How refreshing to read the opening articles with the information on MS, MRI's and how they don't necessarily show up every lesion, symptoms and diagnosis of same.
I now know I am not going nuts and I really truly don't consider that my symptoms are all "psychological."
I thought I had found an ally in the psychologist who initially was great but nope, after taking in my MRI's ( he asked to see them ) he is no better than the others and is another text book junkie!
He said  "your brain lesions could not possibly be producing any of your symptoms and it doesn't make physiological sense!"
I don't fit into the "text book diagnosis" and my lesions don't match my symptoms so therefore they are all now of the opinion that I have just conjured them up to get attention?
Oh please!
Do they really think I want to feel this way? Do they think I have nothing better to do than to surf the internet looking for symptoms so that I can run back and forward and have medical procedures that I hate to get attention?
The psychologist suggested that because I am not in a close relationship with a partner ( I don't have one ) I am compensating by making all of this up so that I feel that somebody cares about me.
Is he for real? I mean, come on!
If you had of asked me what symptoms I had 3 years ago I can only remember telling the neuro I was tired all the time, had become clumsy, was dropping small objects and of course the reason I went there in the first place was because of my facial pain and I was looking to get some type of better pain