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Autoimmune Disorders Community
This is an un-mediated Patient-to-Patient Forum only. This forum is for questions and support regarding Autoimmune topics such as: Acute disseminated encephalomyelitis (ADEM), Addison's disease, Ankylosing spondylitis, Antiphospholipid antibody syndrome (APS), Aplastic anemia, Autoimmune hepatitis, Autoimmune Oophoritis, Celiac disease, Crohn's disease, Diabetes mellitus type 1, Gestational pemphigoid, Goodpasture's syndrome, Graves' disease, Guillain-Barré syndrome (GBS), Hashimoto's disease, Idiopathic thrombocytopenic purpura, Kawasaki's Disease,
Lupus erythematosus, Multiple sclerosis, Myasthenia gravis, Opsoclonus myoclonus syndrome (OMS), Optic neuritis, Ord's Pemphigus, Pernicious anemia, Polyarthritis, Primary biliary cirrhosis, Rheumatoid arthritis, Reiter's syndrome, Sjögren's syndrome, Takayasu's arteritis, Temporal arteritis, Warm autoimmune hemolytic anemia, Wegener's granulomatosis
Does anybody consume alcohol in this forum? I had my first glass of wine since October the other night and have major concerns that it is goign to make my numbers bounce/delay my steroid tapering. I'm pretty sure it will be fine, but I just wondered... It's nice to indulge every now and then.
As far as the alcohol goes, I definitely do not recommend it. I have not touched any alcohol, but I will tell you this, in December my numbers went high, which now they found was due to a cold I was fighting, but my Dr asked me immediately if I had any alcohol over the Christmas/New Years celebrations because even a little alcohol can cause the liver numbers to really rise. For your own livers health, I say try to stay away! When I told my Dr. no, he even asked me if I had 1 glass? He said even w/one glass he notices it with a lot of his patients...I know what you mean about indulging, trust me, but just my opinion. Eat a brownie instead!!!!!!!!!! ha ha
Speaking of which, I started Imuran 2 weeks ago. I seem to have a reduced appetite (good) but no nausea. Have you guys like Imuran for the most part?
Rockmelon44 let us know how your blood tests go.
Kim have you heard from your Dr. yet. I am praying for you that pred. will go down a bit.
I have been on imuran since the beginning and haven't had any complications with it.
My next labs are only in about a month.
Well ladies take good care.
How are you feeling? Is the nausea subsiding at all?
Gentle liver...I could not handle the imuran. I felt great on it, but it caused a toxicity in my body, and I was taken off of it and switched to 6 MP. Which is basically the same thing, but for some reason people who can't handle imuran do well on 6 MP. It seems to be going good now. Let me be the first to say, having a toxicity to imuran is rare. Most people do fabolous on imuran and never, ever have a problem. So feel pretty confident that you'll do great, like most others do. Most people seem to like imuran.
Have a Good One!
Kim, glad to hear that you get to reduce the pred finally!!!
I'm having a blood draw this afternoon and will find out the results tomorrow morning and then I have an appt. with my GI at 10:30.
I've been having problems w/ inflammed cartilage in my left ribs...at least that's what I think it is. At first I thought it might be pluerisy, but now I'm thinking otherwise. I went to see my GP Monday b/c of it....it was very painful. She prescribed an anti-inflammatory (Naproxen). I've taken 5 pills of it so far and while it hasn't gotten any worse, I don't think it's helping yet. I read on the internet that Naproxen could elevate LFT's, so I called my GI nurse yesterday to make sure it was ok to be taking it. She checked w/ my GI and he said it was fine....well, if my LFT's are elevated today, I'm going to be mad!!
Anyways, crossing my fingers for another reduction tomorrow, hopefully I'll be down to 5mg pred and then hopefully off it in 2 more weeks.
I'll let you know how it goes tomorrow.
Have a Good One
Also, I have noticed some of you saying you will be coming off prednisone soon. How can this be?? I was diagnosed in either 2001 or 2002, have been on it since, & the doctor doesn't take me off or even suggest it?? What does the doctor say about taking someone off?? I believe I am to be on this for the rest of my life?? Thanks again, Jody
Erin :O)