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Has anyone been dx with Porphyria Cutanea Tarda?

by Trinity4, Oct 24, 2007 06:12PM
I asked this question a week or so ago and no response.  Just wondering if anyone has ever been diagnosed with Porphyria Cutanea Tarda due to Hep C?  I went to the doc because of blistering and fragile skin on the backs of hand and had blood test done.  That is how I found out I had the Hep C antibody and doc thinks I probably have active virus.  Had biopsy and full blood work done several weeks ago and get results next week.  Just wondering if anyone else has experienced this and if they treated the porphyria first or hep first?
Thanks
Trinity
Member Comments (2)

by katerika, Oct 24, 2007 09:18PM
To: Trinity
I have never heard of this. Just so you know you are not being ignored.
Good Luck to You.
Teri

by cecefozzie, Oct 24, 2007 10:25PM
To: trinity
i have porphyria, its not the 1 you die from its epp . im allergic to the sun it laid dormant until the birth of my daughter . i do have to test my liver once a year. i dont have hep. my niece does thats why im on this web site.
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