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Heart Disease Community

This patient support community is for discussions relating to angina, angioplasty, arrhythmia, bypass surgery, cardiomyopathy, coronary artery disease, defibrillator, heart attack, heart disease, high blood pressure, mitral valve, pacemaker, PAD, stenosis, and stress tests.
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Pulmonary & Supravalvar Stenosis

by coolwater, Oct 26, 2007 07:47AM
I am a mother of a 3year old kid who was diagnosed with a congenital heart disease (pulmonary and supravalvar stenosis).  She doesn't looked like a kid with heart problem because she looks very healthy and she is very energetic. When she was 8 months old her doctor advise her to undergo a closed heart surgery because at that time only a pulmonary stenosis was seen in the 2dechodiagram.  But before the operation, she underwent the same procedure and was found out that there is also a supravalvar stenosis.   Her doctor postponed the operation and advised us to have our baby undergo 2dechodiagram every 6 months and that if her condition don't improve she will undergo an open-heart surgery.  Her doctor explained that her supravalvar stenosis cannot be corrected through a closed heart surgery.   Is there any other option aside from open-heart surgery??
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