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Autoimmune Disorders Community
This is an un-mediated Patient-to-Patient Forum only. This forum is for questions and support regarding Autoimmune topics such as: Acute disseminated encephalomyelitis (ADEM), Addison's disease, Ankylosing spondylitis, Antiphospholipid antibody syndrome (APS), Aplastic anemia, Autoimmune hepatitis, Autoimmune Oophoritis, Celiac disease, Crohn's disease, Diabetes mellitus type 1, Gestational pemphigoid, Goodpasture's syndrome, Graves' disease, Guillain-Barré syndrome (GBS), Hashimoto's disease, Idiopathic thrombocytopenic purpura, Kawasaki's Disease,
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Multiple Symptoms
by yenneygirl, Oct 26, 2007 11:52AM
I am a 33 YO Asian-American Female. For about 6 months, I have had an eye ulcer (uveitis). I have been controlled by constant application of prednisone drops but has not healed. About a month ago, I went to urgent care because the back of the right side of my head was numb and the right side of my face was drooping. I was diagnosed with Bells palsy. A cat scan and MRI/MRA of my head were performed and were clean. (I have a family history of aneurysms). I have gone through a series of blood tests for viruses (HIV, HSV, hepatitis, etc.) and autoimmune conditions (RA, lyme disease, allergy panel, etc.). The only think that has been unusual is my sed rate is slightly elevated (tested twice). Since the urgent care visit, my entire right side has been in dull pain with more pain at the base of my neck on the right side and right hip and shoulder. I think it's joint pain and definitely not bone pain. The more recent symptoms have been body spasms at night while I'm sleeping and my right arm has tremors in certain positions. I just had a spinal tap done this week and the initial tests for infection came back negative. Any other tests will not be available for a couple of weeks. In the meantime, the pain has escalated from dull to annoying and the eye ulcer has not healed. I have been working with neurologist, opthamalogist, rheumatologist and family practice docs and they are all continuing to run tests. Does anyone have any clues?
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If it's not on there, here are some other ideas: You said you have a family history of aneurysms, so maybe you have one pressing somewhere on you central nervous system. It could be on your spine, or on the part of your brain that controls the right side.
A lot of diseases and things that effect people the way yours is, don't normally happen on one side.
Another idea is autoimmune that's attacking your joints, or nerves, but like I said, it shouldn't be one sided.
Since your eye is so slow to heal what ever it is could be in your blood, which makes autoimmune more likely.
Another thought is a false negative, which means you might want to consider getting all your blood tests again. I would also get another MRI, CAT or PET scan. Seen if there's any change. And maybe consider looking at a full body scan to see if you can find anything else.
I'm not entirely clean on how a CAT scan works, but in an MRI if you have a parasite, or something the same density as the surrounding tissue, it won't show up. So get a contrast MRI too.