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Leaking after brain surgery

by Mikef88, Oct 28, 2007 11:05AM
Hi, I had two brain surgeries last year due to astrocytoma. The tumor on my right side was not completely removed, I am currently being treated with avastin and temodar, Recently, clear fluid began leaking out of the surgical scar area when I bend down or lie on my pillow in a certain position. My doctor wants to perform surgey to correct the bone as he is afraid of meningitus. I am leary about going through another surgery as the leaking is not that bad. Has anyone experienced this?
Member Comments

by Jaybay, Oct 28, 2007 01:06PM
I haven't experienced it myself, but you need to listen to your doctor.  Leaking fluid indicates there is an obvious opening to your brain.  That means bacteria can get in, and your doc is right to be worried about meningitis.  Do the surgery!

by Pixiangelj, Oct 28, 2007 03:49PM
I had the same surgery, I had an astrocytoma removed, and they thought I had a CSF leak. So I went through so much testing to determine whether or not this was in fact the case. You definately want to get this taken care of, this means there is a tear in your dura membrane that needs to be repaired. Sometimes it doesn't require surgical intervention, but sometimes it does. And yes meningitis is the harmful risk with a CSF leak. It it not as "deep" as the initial surgery; however, they do have to go under the skull again. If you have any more questions let me know.

by Mikef88, Oct 29, 2007 08:47AM
To: Pixiangelj
What type of testing did you go through to determine it was a CSF leak?

by Pixiangelj, Oct 29, 2007 05:41PM
They will  ask you to bend your head over to see if you are having clear fluid draining out of your nose, or sometimes ears. Sometimes they will do a spinal tap, and shoot a dye into your spinal column and trace your CSF fluid. Luckily I didn't have to have this done, this is a more invasive test, if it is strongly suspected. Have you had any tests?

by Mikef88, Oct 30, 2007 12:47PM
To: Pixiangelj
Thanks for your answer. I have not had any testing, but I have seen my doctor a few times. What other type of fluid can it be if not CSF? It is not draining out of my nose or ear, only out of the surgical scar area.A pinhole.

by Mikef88, Nov 03, 2007 11:03AM
What other type of fluid can it be if not CSF? It is not draining out of my nose or ear, only out of the surgical scar area. A pinhole.

by Mikef88, Nov 13, 2007 08:01AM
Can anyone answer my question I wrote in my last two posts?

by Mikef88, Nov 30, 2007 09:34AM
Is anyone ever on this board? Another question: Is it possible to transmit cancer to another person if that person touches or possibly ingests CSF?
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