This patient support community is for discussions relating to undiagnosed symptoms, breathing difficulties, feeling cold, cough, diarrhea, dizziness, fainting, fever, indigestion, itching, nausea, numbness, pain (chronic), paralysis, rash, sweating, swelling, urination problems, and vomiting.
I've kind of pressured the rheum on this and she just keeps pushing me off to a neuro. I'm moving from WA to AZ in a couple weeks anyhow, so I'll follow it all up there.
Thanks for your input.
http://www.mayoclinic.com/health/polymyalgia-rheumatica/DS00441
Kennedy's disease fits my symptoms very well. My mom has MS so I'm slightly more inclined to having it as compared to those without an inheritance path (although they "say" it's not inherited, they readily say it's more common in those with a parent with it).
Polymyalgia rheumatica presents its symptoms almost completely in muscles where I have no symptoms.
Today I'm twitching again A LOT. It's in both of my feet, both legs, both arms, some in my face, occasionally in my stomach muscles ... but universally worse on my left side. I always worry a lot about the twitching and spasms because I associate those with neuro problems whereas the others can more easily be associated with deficiencies or more treatable conditions.
I have to clarify that I don't really have a lot of pain, but I do get some, usually an atypical form of muscle soreness. In the beginning it was from nothing at all but more recently it's always associated with some form of exertion.
I'd say presently my most prevelant symptoms (but they teeder-todder from day to day) is muscle fatigue (in the sense that slight activities cause excessive fatigue very rapidly, even brushing my teeth), a FEELING of muscle weakness in my limbs (I've not found any true inability to do anything yet, but I FEEL weaker), and the twitching. I'm tempted to say that on the days when my muscles feel best as far as soreness and fatigue is when I have the worst twitching (as it is today).
Certainly appreciate any and all input and experiences with similar symptoms.
My left calf is doing the "worms under the skin" crawl as I type this.
Only time will tell how it all goes now. Just trying to stay as fit as possible. I've had a lot of recovery but I'm certainly not back to how I felt a little over a year ago.