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Autoimmune Disorders Community
This is an un-mediated Patient-to-Patient Forum only. This forum is for questions and support regarding Autoimmune topics such as: Acute disseminated encephalomyelitis (ADEM), Addison's disease, Ankylosing spondylitis, Antiphospholipid antibody syndrome (APS), Aplastic anemia, Autoimmune hepatitis, Autoimmune Oophoritis, Celiac disease, Crohn's disease, Diabetes mellitus type 1, Gestational pemphigoid, Goodpasture's syndrome, Graves' disease, Guillain-Barré syndrome (GBS), Hashimoto's disease, Idiopathic thrombocytopenic purpura, Kawasaki's Disease,
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Drooler with Positive ENA-No Sjornes?
by worrywartboo, Nov 09, 2007 01:24PM
I recently went to see a neurologist because of stinging pain, tingling and numbness over my hands and feet and muscle spasms (twitching) all over my body. Sometimes I can feel the stingy pain in my jaw, kneck and shoulders and running down my arms and up my legs. I also have a hard time keeping my feet and hands warm. I had a positive ENA, but I was negative for everything else including no MS lesions; Negative ANA, Negative rhuematoid factor, Negative ANCA, Negative RPR-R, Negative for Lime Disease, Negative for HIV 1 and 2; Negative for Hepatitis and my vitamin B levels where within the normal range. There were some other things that were only slightly out of the reference range such as Alpha 2 Globulin (H 1.0); Gamma Globulin (H-1.6); Hemoglobin (LO-13.1); MCHC (LO-32.4); RDW (HI-14.7); MPV (HI-9.7) A/G Ratio (LO-1.09).
The neurologist mentioned sjogren's syndrome and I am going to see a rheumatologist. I do have very dry eyes. However, they became dry after lasix surgery. I am thirsty all the time, but, at the same time I am a heavy night drooler. I drool so bad that it pools in my ears. I have been a heavy drooler ever since I was hit by a bottle and had over 400 stitches in my face. I have a cyst in my sinuses and often get a lot of yellow gunk that eventually takes care of itself. My nose is always running. My MRI showed a possible sinus infection. My question: CAN A PERSON WHO HAS A LOT OF MUCUS IN THEIR SINUSES AND IS A HEAVY NIGHT DROOLER HAVE SJORNES SYNDROME. ISN'T IT TRUE THAT PEOPLE WITH SJORNES USUALLY HAVE PROBLEMS WITH DRYNESS IN THOSE AREAS?
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The neurologist mentioned sjogren's syndrome and I am going to see a rheumatologist. I do have very dry eyes. However, they became dry after lasix surgery. I am thirsty all the time, but, at the same time I am a heavy night drooler. I drool so bad that it pools in my ears. I have been a heavy drooler ever since I was hit by a bottle and had over 400 stitches in my face. I have a cyst in my sinuses and often get a lot of yellow gunk that eventually takes care of itself. My nose is always running. My MRI showed a possible sinus infection. My question: CAN A PERSON WHO HAS A LOT OF MUCUS IN THEIR SINUSES AND IS A HEAVY NIGHT DROOLER HAVE SJORNES SYNDROME. ISN'T IT TRUE THAT PEOPLE WITH SJORNES USUALLY HAVE PROBLEMS WITH DRYNESS IN THOSE AREAS?
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Member Comments (1)
by myproblem, Nov 09, 2007 11:12PM
Sjogren's does seem like a stretch considering the amount of drooling you describe. Dry mouth is the hallmark of Sjogren's. Unfortunately, I don't have any good suggestions of what it might be. I will say that given your test results, in my opinion, it seems unlikely to be autoimmune.
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