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Autoimmune Disorders Community
This is an un-mediated Patient-to-Patient Forum only. This forum is for questions and support regarding Autoimmune topics such as: Acute disseminated encephalomyelitis (ADEM), Addison's disease, Ankylosing spondylitis, Antiphospholipid antibody syndrome (APS), Aplastic anemia, Autoimmune hepatitis, Autoimmune Oophoritis, Celiac disease, Crohn's disease, Diabetes mellitus type 1, Gestational pemphigoid, Goodpasture's syndrome, Graves' disease, Guillain-Barré syndrome (GBS), Hashimoto's disease, Idiopathic thrombocytopenic purpura, Kawasaki's Disease,
Lupus erythematosus, Multiple sclerosis, Myasthenia gravis, Opsoclonus myoclonus syndrome (OMS), Optic neuritis, Ord's Pemphigus, Pernicious anemia, Polyarthritis, Primary biliary cirrhosis, Rheumatoid arthritis, Reiter's syndrome, Sjögren's syndrome, Takayasu's arteritis, Temporal arteritis, Warm autoimmune hemolytic anemia, Wegener's granulomatosis
Autoimmune Hepatitis
by Mars24, Nov 25, 2007 09:12AM
Hi to all. I am new to this forum, infact this is the first time I have posted in any forum. Apart from talking to my doctor I have now had the opportunity to speak to anyone who has the same disease. I know support groups help but have never been game enough to try. I hope I can communicate with those who are in this forum for support and if I can will offer my support to anyone with this disease.
Here is a brief overview of my condition.
Have read everyones' tags regarding this awful disease. I was first diagnosed in 1992 at the age of 24 with AIH. Was put on Prednisolone 50mg. Over time this decreased to a maintenance level of 5 mg. Inflammation though reoccurred after some time. This happened on a number of occasions in which case the Prednisolone was increased anywhere between 30 - 40 mg depending on the degree of inflammation and would over weeks decrease it back to 5 mg. I have been on 5 mg now for the past 3-4 years. In about 1998 I was put on Imuran 100mg Inderal 40 mg. I also take Aldactone to control the swelling on my legs although when I was on the high doses of Prednisolone the swelling was everywhere on my body especially my face (moon face lol) I also take a calcium supplement because as you all probably know Prednisolone can cause osteoporosis. Recently though (since august 2003) I suffered mental confusion known as hepatic encephalopathy. This was treated with Lactulose. I have had reoccurrences of this condition 3 times. I am now at the stage where it may occur at any time. My gastroenterologist has referred me to a liver transplant specialist who now manages my condition. I don't know whether I will eventually be having a liver transplant. Its all a waiting game now. I am due to see the specialist next week and he will probably order blood tests. Lets hope that they stay positive.
Some advice from someone who has had the disease for a very long time, stay postitve. The medical profession is discovering new medications, new ways or even cures for alot of medical conditions. The latest one I heard on the news last week is that it has been discovered that the human skin stem cells can be used to grow organs. It is currently being tested on mice and so far there has been a positive outcome. This sounds very hopeful. Anyone else heard anything on this news.
Here is a brief overview of my condition.
Have read everyones' tags regarding this awful disease. I was first diagnosed in 1992 at the age of 24 with AIH. Was put on Prednisolone 50mg. Over time this decreased to a maintenance level of 5 mg. Inflammation though reoccurred after some time. This happened on a number of occasions in which case the Prednisolone was increased anywhere between 30 - 40 mg depending on the degree of inflammation and would over weeks decrease it back to 5 mg. I have been on 5 mg now for the past 3-4 years. In about 1998 I was put on Imuran 100mg Inderal 40 mg. I also take Aldactone to control the swelling on my legs although when I was on the high doses of Prednisolone the swelling was everywhere on my body especially my face (moon face lol) I also take a calcium supplement because as you all probably know Prednisolone can cause osteoporosis. Recently though (since august 2003) I suffered mental confusion known as hepatic encephalopathy. This was treated with Lactulose. I have had reoccurrences of this condition 3 times. I am now at the stage where it may occur at any time. My gastroenterologist has referred me to a liver transplant specialist who now manages my condition. I don't know whether I will eventually be having a liver transplant. Its all a waiting game now. I am due to see the specialist next week and he will probably order blood tests. Lets hope that they stay positive.
Some advice from someone who has had the disease for a very long time, stay postitve. The medical profession is discovering new medications, new ways or even cures for alot of medical conditions. The latest one I heard on the news last week is that it has been discovered that the human skin stem cells can be used to grow organs. It is currently being tested on mice and so far there has been a positive outcome. This sounds very hopeful. Anyone else heard anything on this news.
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What are the toxins you are talking about and did you have any symptons with taking 200 mg of Imuran.
Stay positive. I understand that the kids and your husband are a great inspiration as I have 3 kids of my own and a wonderful husband who love us and need us.
http://www.celiac.org/