anybody have celiac disease?

[Applecore]

I have been diagnosed with celiac disease.  They say I have other food allergies also. Rice, Oat, green beans, bananas, diary products, tomatoes, and numerous more.  Is there someone that has these problems that could encourage me as I also have hashimoto and am still symtomatic and getting it straightened out.  I am taking protonix and it helps with the pain of celiac and am trying to eat without gluten.  I am not stoping the rice, oats, tomatoes diary or other things yet as I am too foggy to try to work this out.  Please if anyone has this problem would you help?    Linda

[bidcirco]

HI, I was diagnosed celaic 7 years ago, I can only tolerate oats from a specific farm in Quebec that are grown where wheat has never been before, any other oats such as Quaker, give the same effects intestinally, as eating gluten. I, and many other celiacs I know can not tolerate dairy at all, but others say they are fine to eat dairy. As for the other food allergies, who told you you were allergic to them, and is it certain? Did you have positive skin tests or blood tests to those foods? It will be awful hard having to omit rice, when you have celiac, as most gluten free foods contain rice flours. Are these reactions more part of a gastro relation, as you have Hashimoto's, and all autoimmune/immune related? Or are these other allergies IGE mediated? My daughter had IGA deficiency(primary immune deficiency), celiac, severe anaphylaxis food allergies to dairy, nuts, eggs, etc. And the doctor's are doing more tests to find out what else she has. Have you been diagnosed with  immune deficiency, as having multiple issues as you have, and ones that are immune and autoimmune related would seem like you may have an immune deficiency. Often after you system had been flared up in the celiac stages, your intestinal system would react to many foods, but once you cut the gluten out for a while, many of those foods would be tolerated normally again, presuming that they were not IGE mediated food allergies. Hope this helps a little, and if you don't mind, could I ask how old you are, and when you were diagnose with Hashimoto's, and symptoms proir to diagnosis, as my daughter has and elevated risk to developing many other autoimmune/immune problems such as that.

[Applecore]

I am 68 and was diagnosed with Hashimoto supposedly about 20 years ago, although no one told me that name.  They just said I was hypo.  I had no symptoms except the doctor noticed lumps in my neck and sent me to an endo.  I took synthroid for about 8 years and then the Lord told me he was healing my thyroid and I reacted to the medicine.  The doctor said he believed that and told me to get off the meds immediately.  He tested me and said I was fine.  That lasted until 2 years ago I started being very weak in my legs and lost weight and I can't remember the other symptoms.  I was then diagnosed with hyperthyroidism and put on methimizole.  Then they did RAI and I was ok for about a year and then I awoke in the middle of the night with anxiety and had to go to the ER.  My tsh was around 980 with normal being .40-4.5.  I have been fighting this battle ever since.  Now prior to the anxiety attack I went to a MD. holistic doctor to see what was wrong with my stomach as I was having severe pains.  He did 16 different blood tests and a thorough stool test and he came up with all these allergies and the celiac.  I started to do something with him but when the thyroid started I couldn't do anything as I was too sick to take on more.  I am better with the thyroid and am trying to address the other things such as the celiac.  I just recently had a blood test by my regular doctor to test for celiac - some kind of a new test and she said I tested positive for celiac.  She wants me to go to a GI doctor and they will probably want to do an endoscopy and biopsy.  My neice has been recently diagnosed with ciliac and they wanted to do an endoscopy and she didn't have it done.  She lives in another state and is in college so I don't get to talk to her very often.  I really haven't been able to handle all of this.  I know what you mean about the rice as this is what is so upsetting.  Not being able to have rice or eggs or dairy severely limits what I can eat plus I do assisted living in my home and have to cook large meals every day.  This is one of the reasons I haven't been able to do much with the celiac.  I have been to two dieticians but medicare will not pay for them unless it is for diabetes.  I am protesting that as diet is the only way to handle this disease.  I don't understand some of what you are asking me.  What is IGE.  I don't have any symtoms except the severe stomach pain and that I can control with taking protonix.  I know that is a temporary cure.  

My symptoms to the best of my knowledge with the Hashimoto were and are, weakness in body, eyes dry and popping at times (don't know why being hypo instead of hyper but symptoms can be the same for both I think) cold all the time, or hot, brain fog, terrible leg cramps to where I can't walk, stomach pain, weight gain or loss depending on what I am hyper or hypo,memory problems, can't sleep, anxiety and maybe depression at times.  I probably will think of many more later.  Please feel free to email me at my personal profile on this forum.  I would love to stay in touch with someone that can help me not be so fearful of this and keep it at a level I can handle.  I am only going by what the doctors have told me as far as what foods I can or cannot eat.  Some of them are listed as 1,2,3,4,5.  It is so confusing to me that I am just trying to eat what gluten free products I can find and not get to overwhelmed.  I don't know whether to go to the GI doctor or back to the MD holistic doctor and do I need to go to a dietician and what kind.  It is so stressful.  I keep hoping I don't have this celiac.  Should I have a biopsy.  When I find my test results I will let you know what they are and maybe you can help me decide if you will.    thank you so very much for answering this.   linda
Another thought, I was just reading some literature that the dietician gave me and it said that anxiety and depression can be caused by celiac.  this will also give me incentive to do this diet as for the past two weeks I have been having anxiety.  How long did it take for you to adjust to having this disease.   thanks again  linda