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More meds & uncontrolable seizures
by Woahday, Dec 08, 2007 09:35PM
My daughter of 30 has been diagnosed with epilepsy since she was 10. She use to have it only at night while sleeping. At first, we thought she was awaken by a bad dream until one day it happened in a day time. Since I didn't know any better took her to ER, after a lot of tests they told my husband & I she had a seizure. It's been nearly 20 yrs. and she's been on every medication you can prescribe for this condition. Just by the Grace of God she grew up fine, went to school, and got even her Master's. Ever since 4 yrs. now, she’s been married, her seizures seem every yr. intensify. 1st with her son (he's 3 yrs.) and then her 2nd pregnancy, he's 4months old. to a point she's just was getting seizures right & left, & so over medicated. Most of the time doesn't make any sense; she can’t remember anything, lost so much weight from loss of appetite. We never leave her alone. Last month finally she decided to go through surgery to put this terrible condition behind. Unfortunately it didn't go as planned, and because of bleeding & blood clot, they had to pull the grids out and stop everything. So now we're back home with more medications. Keppra 4000 mg. Zonegran 800mg. Lyrica 150mg Gabitril 24mg. Please can you help us, where to go from here, who to seek help for her, is there an alternative method to prevent seizures and reduce meds??? Do Vitamins or herbs really work or recommended. I called her doctors just yesterday to let them know she had a really bad attack, and they said just increase her medicine & see you in Feb.???? What do they think?
PLEASE HELP ME TO HELP MY DAUGHTER. ANY SUGGESTIONS????
PLEASE HELP ME TO HELP MY DAUGHTER. ANY SUGGESTIONS????
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I feel very sorry that your daughter has to go through all this.
What your daughter is suffering from is intractable seizures, for which treatment of choice is surgery; hence it has to be re-planned as early as possible.
Secondly, regarding medication, it is a protocol, to add on anti-epileptics if the one which is started is not working.
What I would like to do is see the level of anti-epileptics (ones which have been started) in blood. For this you need to send blood for investigations, just before next dose of anti-epileptics.
If the levels are found to be low of any medicine, then the dose could be increased and the one whose levels are high then dose could be decreased for them.
Hope this helps.
All my best wishes are for her.
Bye.