This forum is for questions and support regarding
Down Syndrome issues such as Dental Problems, Communication Problems, Developmental Disabilities, Hearing Loss, Hypothyroidism, Immune System Problems, Learning Disabilities, Joint Problems, Muscle Weakness, Respiratory Disorders, Seizures, Sleep Apnea, Weight Problems.
Hi Star,
Thank you for such a heart-driven understanding of raising a DS baby/child. I think your right, life comes with no guarantees, even for a child born healthy. It's just hard to look past the fear of the unknown. I know that I have the strength to pull my little family through whatever the days and years ahead will challenge and bless us with.
My limited understanding of day-to-day with DS comes from spending time with my close friend who is now around 60. She has a DS girl of 25 (she had her when she was 32). The daughter unfortunately is not self-suficient and never progressed beyond kindergarten level in her mental development; complicated with speech that is slurred and stuttering that makes it nearly impossible to understand. Her mom is/was her biggest advocate. Fortunatley they are blessed with a large extended family and have been able to co-reside with the grandparents who watch after Lindsey daily. I will not have family availbale to step-in. If needed, how does one go about finding the best resources (education/healthcare) in their community? I live in Oregon.
Again, thank you for sharing.