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Negative Hepatitis results but all the symptoms

by dilly13, Dec 25, 2007 09:20AM
I am a white male aged 34, Not overweight and gym 4 times a week and very healthy.  I went to my local doctor after experiencing Heartburn, headache, nausea, discolored urine and yellow coloration of the Eyes.  A simple urine test detected High Levels of bilirubin was detected in my urine.

Blood samples were taken and virtually all my liver enzymes were found to be very high particularly my ALT and AST levels were 905 and 1105 (I believe the normal range is between  20 and 40.) I was immediately hospitalized for further testing.

I was tested form Hepatitis A,B and C – all were negative (tests were redone and confirmed).  I was tested for Bilharzia , malaria and Auto Immune Hepatitis , all came back negative. When testing my Iron levels, Ferritin test reported a level of over 6000 and a saturation of 85% - extremely high and more blood was taken to test for genetic haemochromatosis ( I am still waiting for the test results).

I am a social drinker and smoke about 15 cigarettes a day.  I have never used recreational drugs (coke, Acid, E, heroin etc) I eat relatively well, mixed diet including vegetables and fruit.  

A liver Biopsy was done and reported that the damage was being caused by chronic severe hepatitis. There was not huge damage caused by either the Iron levels or Alcohol. In hospital my ASL and ALT levels fluctuated slightly and remained high.  I was discharged 3 days ago after spending 6 days in hospital. On discharge my Liver enzymes were still just as high but I was no longer jaundiced (I assume from not drinking any alcohol or smoking during my stay)

All the doctors I have seen do not know where to turn; They have put me on Lipitol and a strict low fat no alcohol diet and are hoping for the best.  I have discontinued the use of my multivitamin, Gym supplements (creatine, fat burners etc) What are we missing what else can I do?

Neil
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