Aa
Beyond ticked off and totally confused
I have to vent. This is the beyond weirdest thing that has happened to me on this journey. I won't mention where I treated, but anyhow. I need pre-certification to re -treat. Long story short is that they never worked on sending it out and I called and it was supposed to be handled. Still no word, so I
called insurance co and they said they haven't heard. Called dr and spoke to secretary and she said she personally handled and brought to docs attention,,let me get your folder. She starts reading the letter that was sent and he says how I relapsed and then gives the reason for relapse he states "against medical advice SHE STOPPED TX EARLY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Well, you could imagine or no maybe you can't cause maybe some wouldn't get upset, but I did.
The story goes on, but I am so ticked off and confused beyond confusion, Even IF that was true -which it isn't, WHY WOULD A DOCTOR WRITE THAT??? - wouldn't he know it would hurt me as far as getting approval?
I'll be back and explain more of what happened, but I really am so upset that it is hard for me to type, I'm serious, I am having trouble typing thats how upset I am.
called insurance co and they said they haven't heard. Called dr and spoke to secretary and she said she personally handled and brought to docs attention,,let me get your folder. She starts reading the letter that was sent and he says how I relapsed and then gives the reason for relapse he states "against medical advice SHE STOPPED TX EARLY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Well, you could imagine or no maybe you can't cause maybe some wouldn't get upset, but I did.
The story goes on, but I am so ticked off and confused beyond confusion, Even IF that was true -which it isn't, WHY WOULD A DOCTOR WRITE THAT??? - wouldn't he know it would hurt me as far as getting approval?
I'll be back and explain more of what happened, but I really am so upset that it is hard for me to type, I'm serious, I am having trouble typing thats how upset I am.
So sorry to hear that your not UND. Some of these NP's really need to go! 3 hrs later, my God. Its really ashame what goes on with all of us and these people that are supposed to help us get well.
check your mail
check your mail
I'm wishing you all the best...you'll be looking back on this someday, from a much better place...promise you! so sorry for your recent troubles!
I cannot even imagine how or why that woman spoke to you that way, or is allowed to treat patients that way. Its absolutely unforgivable rubbish.
You're psychic and somehow you are supposed to know she is waiting on a page? She makes you wait for BAD news?
She condescends to you, and on a first name basis? Its just b.s.
By the way, and you have to forgive me because my brain cells are totally gone nowadays with lack of oxygen, I can't keep track of where anyone is in tx anymore. We need to post on our pages or have a chart or something. When did you start and which protocol are you on? I was thinking that you and I were somewhere close together but not necessarily on the same week, but couldn't remember.
You're psychic and somehow you are supposed to know she is waiting on a page? She makes you wait for BAD news?
She condescends to you, and on a first name basis? Its just b.s.
By the way, and you have to forgive me because my brain cells are totally gone nowadays with lack of oxygen, I can't keep track of where anyone is in tx anymore. We need to post on our pages or have a chart or something. When did you start and which protocol are you on? I was thinking that you and I were somewhere close together but not necessarily on the same week, but couldn't remember.
Hope you start feeling better. I see you are really going thru alot. Sorry to hear.
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S'ok, one of those things, you know? As long as I stay UND I can deal I think. Of course, I remain in constant fear that I'll get pulled of tx. In some ways it works to my advantage that I have a separate hematology and HCV office. Those guys NEVER talk to each other. Hell, the HCV guy is in Germany for the next three weeks. I discussed everything with him last week before he left, all the options (not like there are too many), and he's very nice, told me to handle it how I wanted to, stay at my riba dose, lower it, whatever. He wants me to try to get a consult, so that's what I'm doing, but he said bottom line there aren't any easy answers, he doesn't have answers for me, and to make my own decisions while he's gone about reducing the riba or not, letting the hematologist try prednisone or not for the hemolysis, etc.
I've decided to get a consult before making a decision on either of those two fronts, so that's where I'm at. Hopefully I can talk to someone this week or next week because I can't go more than two weeks without a transfusion.
It IS, as you've said, necessary, sadly, to do a lot of our own legwork to make certain we get the best care, or sometimes, even adequate care. Its very unfortunate and wrong, but true. My doctor though, at least has been honest with me, and doesn't pretend to know things he doesn't. He doesn't blow smoke up my a$$ or try to make things up if he doesn't know the answer. I can respect that in a lot of ways. Its just frustrating not to have a magic answer in the window of the eight ball. Maybe there isn't always one there.
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S'ok, one of those things, you know? As long as I stay UND I can deal I think. Of course, I remain in constant fear that I'll get pulled of tx. In some ways it works to my advantage that I have a separate hematology and HCV office. Those guys NEVER talk to each other. Hell, the HCV guy is in Germany for the next three weeks. I discussed everything with him last week before he left, all the options (not like there are too many), and he's very nice, told me to handle it how I wanted to, stay at my riba dose, lower it, whatever. He wants me to try to get a consult, so that's what I'm doing, but he said bottom line there aren't any easy answers, he doesn't have answers for me, and to make my own decisions while he's gone about reducing the riba or not, letting the hematologist try prednisone or not for the hemolysis, etc.
I've decided to get a consult before making a decision on either of those two fronts, so that's where I'm at. Hopefully I can talk to someone this week or next week because I can't go more than two weeks without a transfusion.
It IS, as you've said, necessary, sadly, to do a lot of our own legwork to make certain we get the best care, or sometimes, even adequate care. Its very unfortunate and wrong, but true. My doctor though, at least has been honest with me, and doesn't pretend to know things he doesn't. He doesn't blow smoke up my a$$ or try to make things up if he doesn't know the answer. I can respect that in a lot of ways. Its just frustrating not to have a magic answer in the window of the eight ball. Maybe there isn't always one there.
Haven't read the whole thread, but my Dr. wrote a letter that said he didn't recommend me tx'ing again. If I am a stage 3 forgetaboutit, I am treating! It is amazing what papers can do!
Lady Y, Not sure about when you were UND, but I am so sorry. I will reread the posts and find out. We will make it through this!!
Lady Y, Not sure about when you were UND, but I am so sorry. I will reread the posts and find out. We will make it through this!!
NP called the cell yesterday with results..after giving instructions to call house phone. Anyway called her back today...twice. 2nd time she picked up and said, " I'm eating my lunch now, Yvonne, I'll call you back. The only reason I picked up the phone is b/c I paged someone..." I said, I'm guessing this means I'm not UND? She said again, I'll call you back in a few minutes... 3 hrs. later, me feelin truly awful (again today) waiting by phone.... really ticked me off...
It seemed like cruel and unusual punishment...
bottom line: I am not UND...continue to tx per dr.s advice...down to 233 vl...
I think doin' back to back Friday pm...nearly killed me. I'm still a mess.
ps I despise this new format!!!!!!!!!!!!!!!!!!!
It seemed like cruel and unusual punishment...
bottom line: I am not UND...continue to tx per dr.s advice...down to 233 vl...
I think doin' back to back Friday pm...nearly killed me. I'm still a mess.
ps I despise this new format!!!!!!!!!!!!!!!!!!!
hi alagirl and pigeonca,
pigeonca, he is a real nice guy, so I would have a hard time thinking he didn't want to tx me. Who knows he may have thought he was helping me and worded it wrong - may have meant that he feels 24 weeks is too short for g 2 with high VL and his medical advice is to tx longer - maybe he thought he was dropping a big hint to the insurance company to let g2 extend for first tx so they don't have to re-treat. Its crazy thats all I know. Logic is missing sometimes as I always say.Hope all is well with you.
Alagirl, its amazing what we all have to deal with with these NP's and doctors sometimes too. Its absolutely crazy. There is so much work that we have to do as a patient with calls, insurance, worrying if out meds are shipped properly (I had that problem once - came warm- sent them back) but on top of it all we have to keep an eye on our medical team and make sure they are following thru with what they are supposed to do. Well this office makes alot of mistakes and this particular one of NOT sending out that stupid letter worked in my favor. Can't wait to see what the doctor has to say. He's actually a very nice guy and this whole thing has me scratching my head trying to figure out what happened and why.
Hope you start feeling better. I see you are really going thru alot. Sorry to hear.
pigeonca, he is a real nice guy, so I would have a hard time thinking he didn't want to tx me. Who knows he may have thought he was helping me and worded it wrong - may have meant that he feels 24 weeks is too short for g 2 with high VL and his medical advice is to tx longer - maybe he thought he was dropping a big hint to the insurance company to let g2 extend for first tx so they don't have to re-treat. Its crazy thats all I know. Logic is missing sometimes as I always say.Hope all is well with you.
Alagirl, its amazing what we all have to deal with with these NP's and doctors sometimes too. Its absolutely crazy. There is so much work that we have to do as a patient with calls, insurance, worrying if out meds are shipped properly (I had that problem once - came warm- sent them back) but on top of it all we have to keep an eye on our medical team and make sure they are following thru with what they are supposed to do. Well this office makes alot of mistakes and this particular one of NOT sending out that stupid letter worked in my favor. Can't wait to see what the doctor has to say. He's actually a very nice guy and this whole thing has me scratching my head trying to figure out what happened and why.
Hope you start feeling better. I see you are really going thru alot. Sorry to hear.
This all makes me wonder if capitation is involved, where doctors are paid extra for withholding treatment. I know this occurs with some HMO's, but it's horrid and is hopefully not what your doc is engaged in doing.
When I used to go to UAB in Birmingham to have my liver tumors (I have focal nodular hyperplasia) followed, the nurse prac (who was an idiot), frequently took down erroneous history, and wrote all kinds of inappropriate comments in my treatment notes, all under the doctor's hand.
She went so far as to attribute the mood she felt I was in each time I came in which never had anything to do with reality. (I have degrees in psychology by the way, I'm fairly certain she does not possess the same). More troubling to me though than her amateur psychoanalysis was the fact that she constantly made mistakes in my diagnosis and medical history. Big mistakes which were then replicated as the reports were sent on to other health care professionals.-
It's one of THE main reasons I chose not to go there to treat my HCV even though its the only place in my state with hepatologists practically. I can't see driving an hour and a half to see a nurse, particularly one who is going to screw up my paperwork anyway. If it comes down to it, I'd rather fly out of state and see a decent hepatologist frankly, than to submit myself to that place again.
You have every right to be angry. I would be livid. You cannot imagine the things I might have said. Words like "attorney," and "bad faith" would have been dropped fairly quickly though, I'm sure.
She went so far as to attribute the mood she felt I was in each time I came in which never had anything to do with reality. (I have degrees in psychology by the way, I'm fairly certain she does not possess the same). More troubling to me though than her amateur psychoanalysis was the fact that she constantly made mistakes in my diagnosis and medical history. Big mistakes which were then replicated as the reports were sent on to other health care professionals.-
It's one of THE main reasons I chose not to go there to treat my HCV even though its the only place in my state with hepatologists practically. I can't see driving an hour and a half to see a nurse, particularly one who is going to screw up my paperwork anyway. If it comes down to it, I'd rather fly out of state and see a decent hepatologist frankly, than to submit myself to that place again.
You have every right to be angry. I would be livid. You cannot imagine the things I might have said. Words like "attorney," and "bad faith" would have been dropped fairly quickly though, I'm sure.
Glad it appears to be resolved. Of course get a copy of the letter for your own records. Personally, I'd still follow through with the doctor personally to find out why this mistake was made. If it was his fault, he's certainly not going to reprimand himself, but if it was a staff mistake, someone needs to be held accountable.
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Well, the NP may have just told them I need to tx over the phone so unless the insurance sends me a copy of what she said.... but as long as I am approved I don't care at this point and I think they will be more careful or whatever. There are a few reasons why this could have happened and each one is kind of creepy scary. You mentioned one. I will see him again though, I did have an appointment but he is in the hospital and hopefully he will be feeling better in time for my next appointment.
So I'll see. I'm still wondering about which peg to use. My mother of course thinks I should stick with Pegasys cause I felt good.LOL I said yeah well I would rather be sick a dog on the other one if it means I will clear. Who cares about feeling good if you are not going to svr? But shes worried for me I guess. Part of me wants to even hold off now as of yesterday I noticed a her face is getting a little yellow (cancer) and that makes me think it may have moved from the bones to the organs. Going thru something hard with her while trying to tx will be difficult for me, so I will wait and see what her next scan says. She has a wonderful attitude but just in the past few days her face looks so different and it has me concerned. This is not going to be easy for me. We are as close as a mother and daughter could possibly ever be. Freaks me out to think about it so I try not to.
I'll let you know what happens with the approval.
PS. what happens if I get approved but I can't start right away ( if I have to take care of my mother) I guess I would just have to tell them the meds have to be on hold, right?
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Well, the NP may have just told them I need to tx over the phone so unless the insurance sends me a copy of what she said.... but as long as I am approved I don't care at this point and I think they will be more careful or whatever. There are a few reasons why this could have happened and each one is kind of creepy scary. You mentioned one. I will see him again though, I did have an appointment but he is in the hospital and hopefully he will be feeling better in time for my next appointment.
So I'll see. I'm still wondering about which peg to use. My mother of course thinks I should stick with Pegasys cause I felt good.LOL I said yeah well I would rather be sick a dog on the other one if it means I will clear. Who cares about feeling good if you are not going to svr? But shes worried for me I guess. Part of me wants to even hold off now as of yesterday I noticed a her face is getting a little yellow (cancer) and that makes me think it may have moved from the bones to the organs. Going thru something hard with her while trying to tx will be difficult for me, so I will wait and see what her next scan says. She has a wonderful attitude but just in the past few days her face looks so different and it has me concerned. This is not going to be easy for me. We are as close as a mother and daughter could possibly ever be. Freaks me out to think about it so I try not to.
I'll let you know what happens with the approval.
PS. what happens if I get approved but I can't start right away ( if I have to take care of my mother) I guess I would just have to tell them the meds have to be on hold, right?
Glad it appears to be resolved. Of course get a copy of the letter for your own records. Personally, I'd still follow through with the doctor personally to find out why this mistake was made. If it was his fault, he's certainly not going to reprimand himself, but if it was a staff mistake, someone needs to be held accountable.
-- Jim
-- Jim
Sounds like progress is being made, but did they revise your chart/letter (taking out the stopping early part against medical advice) or do they have to wait until the doctor is back in the office
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NP said she would do it right now. I made it clear that had to be taken out. She agreed that it shouldn't be in the letter and that its not true, I finished tx. So she'll just call and say I need to tx for 48 weeks etc.And give them the truth.
There are mistakes in every office, but none compares to this. The NP use to complain to me about it all the time and how the patients suffer because of them being short of help. But it goes deeper than that. She blames the doctor, but its not all him, not at all IMO.
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NP said she would do it right now. I made it clear that had to be taken out. She agreed that it shouldn't be in the letter and that its not true, I finished tx. So she'll just call and say I need to tx for 48 weeks etc.And give them the truth.
There are mistakes in every office, but none compares to this. The NP use to complain to me about it all the time and how the patients suffer because of them being short of help. But it goes deeper than that. She blames the doctor, but its not all him, not at all IMO.
Sounds like progress is being made, but did they revise your chart/letter (taking out the stopping early part against medical advice) or do they have to wait until the doctor is back in the office?
While whether or not a doctor should write those words in a chart is an interesting discussion, I don't really see it relevant in your case. You finished 24 weeks, as agreed with your doctor. Therefore you did not stop early against anyone's advice. It's simply a mistake and I would focus on that -- not on whether a doctor should write that in someone's chart of not, assuming the person did stop early against a doctor's advice.
I'm interested in hearing how this all plays out, but it sounds like it will be resolved in a satisfactory manner. As for the mistakes in my charts, I haven't even bothered to follow up yet, but will do eventually. Actually spent a couple of hours today with the insurance company, my orthopedic's secretary and a PT facility, trying to figure out what was needed for in network coverage. I got three conflicting opinions on that one, but this doesn't at all compare to the kind of stress that I felt during (or about) treatment when things didn't work right. Like the kind of stuff you're going through now.
-- Jim
While whether or not a doctor should write those words in a chart is an interesting discussion, I don't really see it relevant in your case. You finished 24 weeks, as agreed with your doctor. Therefore you did not stop early against anyone's advice. It's simply a mistake and I would focus on that -- not on whether a doctor should write that in someone's chart of not, assuming the person did stop early against a doctor's advice.
I'm interested in hearing how this all plays out, but it sounds like it will be resolved in a satisfactory manner. As for the mistakes in my charts, I haven't even bothered to follow up yet, but will do eventually. Actually spent a couple of hours today with the insurance company, my orthopedic's secretary and a PT facility, trying to figure out what was needed for in network coverage. I got three conflicting opinions on that one, but this doesn't at all compare to the kind of stress that I felt during (or about) treatment when things didn't work right. Like the kind of stuff you're going through now.
-- Jim
ladywhy, yes its an answered pray for sure. Answered prayers can be painful at times too. Sometimes you have to get hit hard in the head so that you will make the move or do what you are supposed to do.
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Orphanedhawk.. doctor is out sick himself so he is not in. But its not a 'mistake,' its something that should not have been said about anybody that he wants to re-treat and the NP agreed that that should not have been in the letter at all even if that was the case and she even says she knows I finished. She said "maybe he wasn't feeling well when he wrote it" (what an excuse)
What if someone was pueking their brains out on tx and stopped a few weeks early,, and relapsed, should a doc say that the person went against medical advice, when maybe if they use a different peg next time they might not get as sick and clear?
I posted this not only to vent but to make others aware that they should see the letter before it goes to your insurance to make sure its okay.
Nice painting btw, excellent.
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Anonymous,,,Twilight Zone, yes, that's how I spent New Years Eve. On the couch with my husband watching Twilight zone and I DO feel sometimes thats what its like dealing with all this unnecessary garbage we need to deal with.
Jim, I have a few theories and one you mentioned, but I'm just amazed. Btw now they said that the girl that does the insurance claims just came out and asked for my chart and secretary said why and she said she has to attach my labs before she faxes. So the secretary started hugging her and said OMG this is great and now supposedly NP told me she will call. So now they are saying the fax never sent and this is after the secretary telling me she personally handled sending it. Place is scary.
I won't even go where my mind is or what I believe at this point, but its a little hard for me to believe this doctor wrote that;) Yes it was written, but by him?
So anyhow, I want to tx this disease and svr and never hear the word hepatitus c again. Thats how I feel right now.
There is alot that I left out to the leading up of getting this approved, but it comes down to constantly having to give them a few weeks, so not to seem unreasonable (and I'm not) and then to do follow calls and find out they didn't do a thing. More than once. Its just a long story and it give me a headache to even talk about it.
I know it had to be frustrating for you to find wrong info in your chart, but this was a letter that was supposed to be showing every T was crossed and every i was dotted. When he told me what he was going to say,it was fine, no mention of stopping against medical advice. He knows thats not the case.
So my husband took off today and made me feel better but he is going out with his buddies right now so I will try to chill. I feel better now, but lots of different things going thru my head as to how this could have happened:)
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Orphanedhawk.. doctor is out sick himself so he is not in. But its not a 'mistake,' its something that should not have been said about anybody that he wants to re-treat and the NP agreed that that should not have been in the letter at all even if that was the case and she even says she knows I finished. She said "maybe he wasn't feeling well when he wrote it" (what an excuse)
What if someone was pueking their brains out on tx and stopped a few weeks early,, and relapsed, should a doc say that the person went against medical advice, when maybe if they use a different peg next time they might not get as sick and clear?
I posted this not only to vent but to make others aware that they should see the letter before it goes to your insurance to make sure its okay.
Nice painting btw, excellent.
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Anonymous,,,Twilight Zone, yes, that's how I spent New Years Eve. On the couch with my husband watching Twilight zone and I DO feel sometimes thats what its like dealing with all this unnecessary garbage we need to deal with.
Jim, I have a few theories and one you mentioned, but I'm just amazed. Btw now they said that the girl that does the insurance claims just came out and asked for my chart and secretary said why and she said she has to attach my labs before she faxes. So the secretary started hugging her and said OMG this is great and now supposedly NP told me she will call. So now they are saying the fax never sent and this is after the secretary telling me she personally handled sending it. Place is scary.
I won't even go where my mind is or what I believe at this point, but its a little hard for me to believe this doctor wrote that;) Yes it was written, but by him?
So anyhow, I want to tx this disease and svr and never hear the word hepatitus c again. Thats how I feel right now.
There is alot that I left out to the leading up of getting this approved, but it comes down to constantly having to give them a few weeks, so not to seem unreasonable (and I'm not) and then to do follow calls and find out they didn't do a thing. More than once. Its just a long story and it give me a headache to even talk about it.
I know it had to be frustrating for you to find wrong info in your chart, but this was a letter that was supposed to be showing every T was crossed and every i was dotted. When he told me what he was going to say,it was fine, no mention of stopping against medical advice. He knows thats not the case.
So my husband took off today and made me feel better but he is going out with his buddies right now so I will try to chill. I feel better now, but lots of different things going thru my head as to how this could have happened:)
Have you talked to the doctor about this? We all make mistakes at times.
I'd go straight to the man and say, ' I think you confused me for one of your other patients.' Bring any proof, like labs w/dates, with you. Good luck
I'd go straight to the man and say, ' I think you confused me for one of your other patients.' Bring any proof, like labs w/dates, with you. Good luck
Lol...Twilight Zone...isn't that the truth. I have a dcotor that has two offices in my city, each with a nurse with the same name. So anything I fax to one usually ends up with the other. And if that isn't bad enough, I have one nurse that calls and leaves messages on my voicemail that swears during my call back that she didn't.
And to think, these people have my life in their hands!!!
And to think, these people have my life in their hands!!!
It's absolutely bizarre....!!! You poor thing....ohhh.
Dear, I think you got your answer regarding our prayers..What to do...where to go... I know you will get this rectified...jus sorry you have to deal with it.
The more I read and the more I experience dr.'s/tx/hep c...i feel like I'm in a series of the "Twilight Zone."
With God's help..."This too shall pass."
Love you
y
Dear, I think you got your answer regarding our prayers..What to do...where to go... I know you will get this rectified...jus sorry you have to deal with it.
The more I read and the more I experience dr.'s/tx/hep c...i feel like I'm in a series of the "Twilight Zone."
With God's help..."This too shall pass."
Love you
y
...I didn't go and play with your chart to make my dead brain feel better.
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What?
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What?
This is so beyond - beyond. Thanks both for your replies. BTW Jim I didn't mean you or anybody else wouldn't be 'upset.' In my being upset, I phrased it wrong - really meant "THAT" upset, as in TONE I had on the phone. I stopped the girl when she was reading it and I said, "WAIT, HOLD IT, WHAT DID HE SAY, WHAT? ARE YOU KIDDING ME, YOU'VE GOT TO BE KIDDING ME." The girl didn't understand how wrong it would be for a doctor to write that until I said that and then she said "ohh, you're right." I was going on and on and saying how that place - nothing surprises me at this point, but this took the cake.
But anyhow NYgirl, I almost stopped at 16 weeks cause my NP said that I am ever SVR or not by now and I thought about it and then got nervous and said I would go to 20 and THEN I thought about that and said, NO WAY I won't be able to live with myself if I relapse so I went to 24. As a matter of fact when I told Jim I deceided 24, he posted a funny thing back that SHOWED how well he knows me and he said, I figured you'd tell me you were doing 48, so I'm not surprised (or something like that, but it was funny,)
But here's the thing,,,,EVEN IF IT WERE TRUE,,,,,,AM I THE ONLY ONE THAT SEES SOMETHING WRONG WITH THIS PICTURE?????
Be right back. The phone.
But anyhow NYgirl, I almost stopped at 16 weeks cause my NP said that I am ever SVR or not by now and I thought about it and then got nervous and said I would go to 20 and THEN I thought about that and said, NO WAY I won't be able to live with myself if I relapse so I went to 24. As a matter of fact when I told Jim I deceided 24, he posted a funny thing back that SHOWED how well he knows me and he said, I figured you'd tell me you were doing 48, so I'm not surprised (or something like that, but it was funny,)
But here's the thing,,,,EVEN IF IT WERE TRUE,,,,,,AM I THE ONLY ONE THAT SEES SOMETHING WRONG WITH THIS PICTURE?????
Be right back. The phone.
I know you didn't but for some reason I always truly believed that you stopped at week 20 myself. I thought I remembered begging you not to but you were happy because you were UND at week 4 and I was worried you'd relapse if you quit early. How I can remember something that never ever happened in such detail is beyond me. It's the most bizarre thing - so now i read this and go wow...there are others in the universe more confused even than me? This is freaking me OUT!I promise you though...I didn't go and play with your chart to make my dead brain feel better.
Unless a person picked up their meds every week and pretended to take them and the doctor didn't know they weren't...it should be easy enough to prove you did the full treatment. Get the pharmacy records to show how many doses you picked up - that with a copy of your EOT PCR it should show the bloodwork was still being affected right? It's easy enough to add up date A to date B and say look EOT PCR at week 24 - bingo.
Unless a person picked up their meds every week and pretended to take them and the doctor didn't know they weren't...it should be easy enough to prove you did the full treatment. Get the pharmacy records to show how many doses you picked up - that with a copy of your EOT PCR it should show the bloodwork was still being affected right? It's easy enough to add up date A to date B and say look EOT PCR at week 24 - bingo.
Makes me wonder what my doc would have written on my chart if I had relapsed, since he at one point wanted me to treat longer than 54 weeks. Maybe what we as patients need to do, when in doubt, is get the doctor to physically sign off at EOT. But as you said, you didn't stop early, so that doesn't seem to pertain.
Maybe that NP you didn't get along with wrote the letter under the doc's signature. Just a thought. Either that or something is very mixed up. I'm sure it will get straightened out, but I don't think you're over reacting. I would be very upset over this. Do let us know how things get resolved.
Otherwise, Be well,
-- Jim
Otherwise, Be well,
-- Jim
"Beyond ticked off and totally confused"
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Funny, I knew it was your thread from the title before I read the post. LOL.
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But seriously, how frustrating. And how common. I was reviewing some old MRI reports a few months ago and found out that not only did I have a history of cirrhosis (I don't) but that I also had Hepatitis B (I don't). I mean to have those things taken care of one of these days to get the records straight.
That said, what you state is on an entirely different level, esp since it could affect your insurance.
My suggestion is to take a valium before you call the doctor so you don't say anything you won't regret, but I would call the doctor directly and tell the office staff that you want a call-back from him personally. Obviously it's a mistake since you did 24 weeks and because of what has already transpired should get his personal attention. If I were you, I'd probably be bonkers over this, and follow my own advice re the valium and then the phone call.
You know, I sometimes wonder if someone closed the patient folder (not that the docs have them all the time) and asked the doc what a given patient's genotype, stage of fibrosis, week of treatment, and viral response was, etc -- how the doctor would score. I doubt very well. That's why when I always saw my doc I'd preface quesitons with something like "given that I'm stage 3 and was UND at week 6 and treating for the first time ...etc". That way at least I knew that they had that info :)
-- Jim
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Funny, I knew it was your thread from the title before I read the post. LOL.
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But seriously, how frustrating. And how common. I was reviewing some old MRI reports a few months ago and found out that not only did I have a history of cirrhosis (I don't) but that I also had Hepatitis B (I don't). I mean to have those things taken care of one of these days to get the records straight.
That said, what you state is on an entirely different level, esp since it could affect your insurance.
My suggestion is to take a valium before you call the doctor so you don't say anything you won't regret, but I would call the doctor directly and tell the office staff that you want a call-back from him personally. Obviously it's a mistake since you did 24 weeks and because of what has already transpired should get his personal attention. If I were you, I'd probably be bonkers over this, and follow my own advice re the valium and then the phone call.
You know, I sometimes wonder if someone closed the patient folder (not that the docs have them all the time) and asked the doc what a given patient's genotype, stage of fibrosis, week of treatment, and viral response was, etc -- how the doctor would score. I doubt very well. That's why when I always saw my doc I'd preface quesitons with something like "given that I'm stage 3 and was UND at week 6 and treating for the first time ...etc". That way at least I knew that they had that info :)
-- Jim
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