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Stroke Community

This patient support community is for discussions relating to stroke, rehabilitation, ability to eat/swallow, alertness, bowel/bladder control, depression, motor skills, nutrition, orthotics/braces, pain, prevention, senses, and spasticity.
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Balance deficit

by Marlio, Jan 09, 2008 05:22PM
My husband had uncontrolled HTN, recurrent acoustic neuroma size of english walnut on brainstem.  During surgery he had a stroke.  Since he had droop from loss of facial nerve, stroke was not diagnosed immediately.  They termed as mild stroke.  He had an immediate problem with 9th cranial nerve (as of now double vision decreased with prism glasses).  They did a VII - XII anastamosis 6 days after initial surgery.  He had a feeding tube, but is now, one year later, able to eat a soft diet. His "facial nerve" is regrowing some but not completely.  He is blinking, but not completely closed. He has had a lot of physical therapy, and works hard, but his balance is not returning. He is unable to walk without his walker, stating he feels like he is falling back or forward.  He also has a lot of pain on his left side, saying it feels like hitting his crazy bone.  He c/o pain constantly on that side.  His right side is still numb from the facial nerve but is better, it also hurts.
He had a csf leak and had to have surgery to seal off the fluid through his ear.  In June  he had a csf leak again, and they made the incision above his ear again and did another fascia/fat seal. He had meningitis right before this that alerted us (we were praying the fluid from his nose was sinus drainage).  My question.  The drs keep telling us that balance is hard to come back and with his setbacks, we can expect it to take 1 to 2 years. after his last surgery.  He had his cva 1/12/07 was in hospital or rehab until Mar.  He was walking a little without holding on, but after a bout of knee infection, meningitis and other surgeries he requires a walker. Question:  Do you feel he will regain his balance and walk (even with a cane),  is there anything we should be doing that would increase his balance. (vasodilators).  He lifts weight and uses bands and can walk on the treadmill, but when he tries to walk, it is a controlled fall.  I know I wrote a lot, but he has a complicated history.
Thanks for your time
Marlio
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