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Degenerative Diseases Community

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Possible ALS ?

by MOM23ANGELS, Jan 16, 2008 08:36PM
Ok, so I have posted on the migraine board a few times and thought I would try this... I have had severe migraine headaches since I could remember.. They do run in my family, but so far I am the only one who get's them this bad....... Here is what happens... :::::::::
When I get hit with one, (AND I MEAN A BAD ONE!) I go completely numb on my left side, I fall because I cannot feel the ground I am walking on and my left leg just give out on me. I start to slurr my speech like I am drunk, and the whole left side of my face droops kind of like I have had a stroke... These thing's only last for about 4-5 hours after my migraine has ended...... I have blacked out before, and my vision get's very blurry... 3 year's ago I had a MRI of my brain and it revealed that I had a 1cm lesion on the left cerebral side of my brain. The nuerosurgeon I saw told me that he didn't think it was anything to be worried about because it was almost like it was transparent.. ( you could see the brain tissue underneath it)..... I went back 3 months later and had another one done and it had grown 1.5 cm in size..... He still was not concerned........
Now, I just not found a dr. who will actually beleive me and try and help.. All this time no Dr. has believed that my symptoms were this bad.... The only type of pain relief I can get is when I go to the ER and they usually have to give me a morphine drip to kill the pain..... My neck get's so stiff and hurts so bad I cannot move...... The day before Thanksgiving I had one so badly, that it scared me..... I woke up, sat up in my bed and felt a popping sensation on the left side of my head... It was instantly followed by a huge migraine... I went to the ER and the nurse was concerned because my pupil's were dialated and they shouldn't have been... They just gave me drugs and sent me home.....

I guess what I am trying to get at is am I showing early signs of ALS ????? I have had tests done and refuse an EMG because it's too painful and I can't handle it......... Could I have ALS ??????? Please help. .... Since Thanksgiving, these have gotten worse.... I am scheduled to see a specialist, but not for another month and a half...... Any suggestions or help you can give me would be greatly appreciated... Thanks,

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