This forum is for questions and support regarding neurology issues such as:
Alzheimer's Disease,
ALS,
Autism, Brain Cancer,
Cerebral Palsy, Chronic Pain,
Epilepsy,
Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders,
Stroke, Traumatic Brain Injury
Bye.
I will get the reports faxed to me by today.
Currently my Uncle is undergoing Ayurvedic Massage Therapy in Kerala, India.
I will get back to you with more precise report details.
Thanks again.
There is no treatment just a continuous symptomatic control. Ritozole only extends life by only a few months and thus far, there is no cure. I cannot stress enough though, to keep a watchful eye as swallowing become difficult. If you have any more concerns,please let me know. I do understand the heartache this illness leaves in its wake.
I would keep you updated with what medical assistance is being given to my Uncle.
He had troubles with his vocal chords initially, where he could not speak at all. It turned out that there was an ulcer behind his vocal chords and now that ulcer has subsided.
I have read that Pranayama & Yogic Breathing (http://www.healthandyoga.com/html/pran.html) helps in this situation.
In India, Yoga has been witnessed to cure many incurable ailments.
Though with Urbanization, people have overlooked its healing powers.
God Bless.
My father is been suffering from MND for the past 2 years.
i would like to mention that there are 4 type of MND and my father has been affeted with worst of the lot ; Progressive bulbar palsy (pbp). from what you have told .. it could be the same.. do see if your uncle had difficulty in swallowing and speach in the intial stages
i would like advise you that .. please do not do any kind of massage as it will only fasten the process. My father had under gone this and i still cannot forgive myself for allowing that. I am from kerala and i had taken him to best ayurvedic doctors there. You can do NASYAM or Dhara and also take ayuvedic medicines as all these would increase his resistancy.. BUT DO NOT DO ANY KIND OF MASSAGE. Rilotzole is an expermental drug which causes different side effects from patient to patient.
YES, its painfull to watch the person whome u love... you adore... die in front of you day by day. But yes... i have become stronger day by day... and yes i hope you all have the strength and courage to see through it. never lose hope.. people... never lose hope ... as each day is a new day for him and you.
( i know of person who has been diagonised with MND for the last 10 years)
please feel free to contact me in case you have anything to discuss in this regard.
love
vishnu kaumar
chennai
india
soothsayer81 @ gmail com
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