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This patient support community is for discussions relating to heart rhythm issues, arrhythmia, irregular heartbeat, implanted defibrillators, pacemakers, and tachycardia.
Had an ablation 11 days ago. They told me my chances for a cure was 95%. I'm surprised they haven't given you the option of at least seeing an EP specialist if your condition is adversely affecting your life. The doctor also told me that without the ablation, I would have had the condition for the rest of my life.
sueinns, I hope your ablation is successful! You were passing out? I usually feel just fine during the episode, though I feel a little weak in the legsLeg lengthening/shortening Leg pain Leg pain (osgood-schlatter) Shin splints immediately after. I suspect that's due more to my having been working out vigorously and having to stop abruptly without a cooldown. Are you having PVCs or PACs? While PACs seem more likely, maybe not. I have both.
Good to know I'm not alone in my frustrations, though I certainly wouldn't wish this on anyone.
I hope I do well too. The PVC's used to always trigger the SVTParoxysmal supraventricular tachycardia (psvt) but not since the ablation. They have been bad the last couple of days but I'm really good at ignoring them. Mine go into trigeminy - I can keep tune with them (beat, beat, beat ....long pause.....beat, beat, beat and so on for hours on end).
acjviolin Female, 39 years Boiling Springs - NC Member since Jan 2008
, Jan 26, 2008 01:39AM
To: tsco/anacyde/sueinns
Gosh,tsco! Shut my mouthMouth sores Oral cancer! You are a tough fella. Seriously,I'm so sorry for your condition. Thank you, thank you, thank you for the help that you provide for all of us- very gracious of you. Thanks also to anacyde and sueinns for your insight as well- Im very appreciative. Thinking of all of you,
Mood: anacyde Is getting a little chilly with all this cool weather Journal Entry: "I can't believe I haven't been here in ha..." [Read]
Oh yes.....This can really get one down. I am so obscessed about when it will happen next. I have become reclusive. I am also very active or use to be. I can relate to the bearing down and the splash cold water on the faceFace pain. I was told these would not kill me and an ablation was offered. We need more techniques and a reason why this is happening...abnormal pathway? Nutritional defeciencies? If they can put a man on the moon......is ablation the only soulution? We are all together in this and stay hopeful!
Amy
Had an ablation 11 days ago. They told me my chances for a cure was 95%. I'm surprised they haven't given you the option of at least seeing an EP specialist if your condition is adversely affecting your life. The doctor also told me that without the ablation, I would have had the condition for the rest of my life.
Since my ablation, I've continued to have PVC's but have been able to run without stopping and not once has my heart raced nor have I felt faint. Time will tell whether it's been a success but I'm staying optimistic.
acjviolin, SVT used to set my nerves on edge too, but after 13 years of having it, it's just annoying now. I think CBT will really help you, I think back when this started for me it would have been beneficial for myself as well. I hope you find some relief, both from the SVT and the worry.
sueinns, I hope your ablation is successful! You were passing out? I usually feel just fine during the episode, though I feel a little weak in the legs immediately after. I suspect that's due more to my having been working out vigorously and having to stop abruptly without a cooldown. Are you having PVCs or PACs? While PACs seem more likely, maybe not. I have both.
Good to know I'm not alone in my frustrations, though I certainly wouldn't wish this on anyone.
I have learned also to deal with the SVT, usually I lock in around 140 to 160. I just kind of said screw it although sometimes depending on my mental state I feel panic for a while at the onset. It hasn't killed me in 12 years so I guess like you all I have something that isn't going to kill me just cause me a pain in the a@#. Anymore I find the PACs more alarming. I don't know why but the ones here and there I can handle, but I have been stuck in bigenemy and I hate it. It worries me like I don't know what, and I don't know why.
Sueinns I hope you continue to have great luck with your results, for life.
I hope I do well too. The PVC's used to always trigger the SVT but not since the ablation. They have been bad the last couple of days but I'm really good at ignoring them. Mine go into trigeminy - I can keep tune with them (beat, beat, beat ....long pause.....beat, beat, beat and so on for hours on end).
SVT is more common on the right side - mine was on the left so they had to poke a hole from the right to the left side when they did the ablation. A wee bit more invasive but not uncommon.
I have never passed out but came close numerable times. I had to hang onto something or sit down and take deep breaths. It was always related to working out intensely and almost always right after I stopped. This would last for weeks anytime I got my heart rate above a certain point. Then, for no reason, stop and I'd feel normal again. Try to explain that to anyone who can't relate.
Tsco - 4 ablations - wow - I cannot imagine how tough it has been for you. It certainly takes our coping skills to a whole new level.