This patient support community is for questions related to juvenile diabetes including celiac disease, depression, diabetic complications, hyperglycemia / diabetic keto-acidosis, hypoglycemia, islet cell transplantation, nutritional issues, parenting a diabetic child, pregnancy, pump therapy, school issues, and teens with diabetes.
Cost/benefit analysis question:
If i actually go to the hospital, (I have in the past in similar situations a handful of times) I recall the treatments you've mentioned IVs etc. but I don't recall the situation actually alleviating more quickly than if I stayed home. What do you think? I wonder if there are worse things that I am causing (cell damage/etc..) by waiting it out...
I admit I have the 'Been there, done that' mindset. I don't even call my GP anymore because it's always the same scenario, same symptoms, same recommendations, and same end result: just wait it out. But if there are potential risks that could be lessened by hospital admittance, then I'd probably go. (FYI last check @ 10:50 pm PST = HI. The new Onetouch UltraMini cant read over 600, so it's up there somewhere)
http://www.isletsofhope.com/diabetes/care/ketones_1.html
In any event, if you are having this trouble fairly often, I would check into changing doctors. There may be some sort of insulin or insulin delivery system that will work better for you than what you are using now. Sugars this high damage small blood vessels and can lead very quickly to eye, kidney, or heart damage, OR nerve damage, and all of these are things that can destroy quality of life. I would encourage you to not rely on a GP for help, but to insist on being referred to an endocrinologist who specializes in type 1 diabetes. You shouldn't have to live this way.
One more thing, have you noticed a monthly hormonal pattern to the high glucose levels? Some women do find that when certain hormones are high, glucose levels don't seem to respond to insulin as well. It is possible that some therapies to change your hormonal levels could help you if this is the cause.
Seriously, sugars this high can lead to coma, and if this happens, you may not have enough warning time (starting to feel woozy, etc.) to get to a hospital. I would encourage you to go NOW. You should not have to wait it out. I gather from the fosamax medication (I checked to see if that medication could be a part of the problem, and did not find any studies on it and glucose levels, but it might be worth removing it for a short time to see if it may be a factor) that you are female, and I truly encourage you to get to a specialist who knows how hormones affect women. I am also female, and I have not had to put up with levels like this, EVER!!!! Once damage has been done, it is too late to help you, so you need to be aggressive about insisting on getting the right help. Back when we were children, not as much was known and people did have to put up with swings in glucose like this, but so much more is available now to help us out that I really suspect that a good specialist can help.
As for hormones: I'm in amenorrhea, and have been for years, so hormone fluctuation is probably not a significant factor causing the sugar change. As for effect of BS on the hormones or menstruation, I haven't noticed any. And the hyperglycemia isn't consistent enough to note any correlation between hormones (or lack thereof) and BSs.
I have not tested for keytones in 15 years. Five years of consistent testing showed me that the patterns between BS spikes and keytone spikes were pretty regular, as sugar got over 300. The levels were even more consistent when the BS stayed high. I stopped testing because the BS patterns seemed an excellent indicator. I have information gathered since then, and never come across anything to dissuade me from this course. For example, even if I had keytones, what could i do other than what I am doing now?
I fluctuate between 3 different bottles, all open and unrefrigerated. One Lantus expired in July, but in my 20years, I've found that a bottle has a good 6 months after the expiration date before it begins losing effectiveness. Perhaps this is the cause, though. I'll switch it up.
I called in for a prescription of Keytone strips. I'll let you know. But question: what else can Doctors do to lower my sugar that I'm not doing? I'm considering stopping eating at this point, as I feel like I'm out of options.
(And thanks for your input. I really appreciate it)