What could this be?

[bowhunter0310]

Hello doc,  I am a 36 year old female that started getting migraine headaches about 7 years ago.  In the beginning of 2001 I had what the ER doc diagnosed as a panic attack, I got real nauseated and felt like I was either going to vomit or pass out.  I had numerous tests ran at that time and everything was normal.  The nausea lasted 3 months.  I went for my annual gyn exam and mentioned it to him, he ran a bunch of blood work and the only thing that came back abnormal was I had a reactivated EBV infection, even tough I had no symptoms of mono, just nausea.  I had numerous gastrointestinal testing done also, normal.  After the nausea subsided I started getting the feeling of bugs crawling in my head and upper legs.  I have everyday the bug crawling feeling on my face.  I have had 2 brain MRI with and without contrast.  One in 2006, the other a year later in 2007.  Also complete spine, the brain was normal, but the c-spine showed a bulging disk at C-3.  Now on a daily basis I get razor burn feelings that just pop up at random places, like near my ankles, under arm pits, etc...  Neuro thinks that  I am suffering from a post viral syndrome.  No EMGs, or EEGs performed.  Blood work has been, CBC, EBV (now normal), Sed rate, ANA, IPEP/SPEP, FSH, TSH, antiocardiophosoid(spelling?), RA factor, and a few others that I can't remember...  She says maybe small fiber neuropathy, said she could do LP but with no lesions on brain wouldn't be able to diagnose MS anyways, so I declined.  I have no weakness, numbness, vision is fine, bladder and bowel good, heat makes me feel better.  My concern is MS because my gram was diagnosed with it when she was 60.  What else would cause these sensations with no weakness present, or atrophy?  I also had a Lyme disease titre also, it was normal.  Migraines run in my family also.

Thank you so much in advance.  

Jennifer

[Jenny Wren]

Bumping up

[waterspice]

Hi

I was woundering if you have any spasms or twiching also with this.  This sounds a lot like what I go through except I have spasms with it.

[bowhunter0310]

yes, i do.  mostly twitches, these started when i had the nausea.  spasms only every once in a while.  whats your symptoms?  tests?

jennifer

[waterspice]

well i have had them for 10 years now and worsend after flu shot in 2003.
a lot of sporadic buring like fire in skin and tingling crawling and lot of twitching and spasms.  also stabbing pain that jumps from one place to the either and lasts a few seconds.  

I have had every test but no conclusion.

mri from top to bottom
emg
eeg
muscle biopsy
blood test
spinal tap

all come normal.

have you noticed if it gets worse if you get sick...like allergies or something.

[Jenny Wren]

Hi there.  I don't notice it worse when I'm sick, or with allergies (I have allergies year round).  I do notice it worse before menstration.  I don't know if you are male or female.  When you mentioned muscle biopsy, did it include a nerve biopsy also?  I don't know what my next step is, I'm so tired of my body feeling like carpet burn.  I was thinking about looking into Lyme disease further, since the normal tests aren't that accurate.  I am going to try to go to another neuro and see what happens there.  Do you have symptoms everyday?

See ya, Jen

[waterspice]

ya i have them everyday but there have been times with zero pain for a month but it all comes back.  i

it was just muscle but it did have some nerve fibers that the report mentions and says it was normal too.  Mine gets worse during menstration too.  but its confusing caus esome of the worse has been around other times too.  

are you having this all over.  mine is from head to toe.

its hard for pain management cause they cant just stick me with some med since they dont know which nerve exactly.

its hard I know. you go thrugh so many scenarios..

[CHRISTY356]

IT;S CALLED EPILEPSY AND I HAVE HAD IT ALL MY LIFE FROM 1968-1998 AND IT WAS VERY SCARY AND FRIGHTNING THEN I HAD BRAIN SURGERY IN 1998 AND I RECIEVED 2 MIRACLES FROM
JESUS 2 HEALINGS OF EPILEPSY

[Heather305]

Hi, This is so strange.  I have similar symptoms with no diagnosis.  8 months ago I was washing dishes under no stress and felt like giant bugs were crawling out of a hole in the left side of my head.  I became severely disoriented, but everything checked out at the ER.  It felt like a stroke.  For the next two months I felt fine, but had a constant milder crawling sensation at the same spot on my head.  6 months ago, I had another bad episode and really felt like I was going to die.  Since that day, my daily symptoms have been a nightmare!  I have no quality of life left whatsoever.  The left side of my head is always in pain (coming from that one spot back left) and I have severe waves of disorientation with it along with stabbing chest pain around my heart