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Sudden Infant Death Syndrome (SIDS) Community

This patient support community is for discussions relating to SIDS, back sleeping, bedding, breastfeeding, genetics, pacifiers, prenatal care, and prevention.
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My baby died and i need hope!

by misskriss, Feb 12, 2008 03:42AM
Hi everyone i have only just joined tonight.  I lost my beautiful daughter at 3 1/2 months in November which shattered my world.  Then 2 weeks ago i found out i was pregnant again then miscarried last week.  I really need to know that other people have continued to life life and not just give up, lay down and die?
Member Comments (12)

by Jizi, Feb 12, 2008 11:25AM
To: misskriss
My heart goes out to you, as a mother I couldn't imagine going through what you have gone through, don't give up hope, try to be strong, I know its easier said than done. We are all here for you, if you need someone to talk to.

by misskriss, Feb 17, 2008 02:24AM
To: Jizi
Thanks heaps :)

by emily_gourley, Feb 20, 2008 01:00AM
I lost two kids. My daughter Lilly was 5 1/2 weeks old and she passed away from a congenital brain defect. Then a year later, we had our son Ryker. He was born with a broken heart, and had surgery at 5 days of age. He did really well, until he was 7 weeks and then formed a clot in his heart, and it happened so quickly there was nothing they could do. He passed away December 15, 2007. Don't give up hope. Through our tough times in life, we grow the strongest. What an amazing little angel your daughter must be, and how much that says about you is incredible too. It sucks though, there really is no fairness, but we must hold on to our faith of being with them again some day. Keep trying, your day to be a mother again will come, as mine will too. Being patient is the hardest though! Just take life by each day. There will be god days,and bad days too. And soon, there will be more and more good days.

by g8r grl, Feb 22, 2008 09:10PM
To: misskriss
Have you heard of www.memory-of.com? It's a website where you set up an online memorial for your loved one. Most of the sites are made by parents who have lost their children (of all ages) and there is a HUGE support system on that site. It's also a place where your friends can leave messages for you and light candles in memory of your daughter. You can post pictures and write about your daughter's legacy. Many parents use the site as a place to "talk" to their children and to send them messages. There are thousands and thousands of parents on there and they are very supportive. Maybe give it a try if you feel up to it.

I'm so sorry for all of the grief and pain that you are going through. I hope you can find the support that you need...

by mamacitato3, Feb 23, 2008 11:00PM
To: misskriss
I cannot even imagine what you must be going through. I have never lost a child in that way but have had a mc and almost lost my son 4 times while I was pg with him and 2 times during his birth and he has had alot of medical issues. I know it's not the same but I just wanted to say that I feel for you and will pray for you, your family and your little angel baby. Don't give up hope! Best of luck and blessings! (I wish I could say more to help you but just don't know what to say except God is good and will help you heal over time.)

by ChasityB, Feb 25, 2008 01:19AM
To: MiissKriss
Hi! I don't know how you are feeling exactly but I was relieved to see I wasn't alone.
My baby girl died on Christmas night and she was 5 1/2 months old. My daughter was my world and as the days go by I miss her more & more.

From Bianca's Mum

by ksade08, Mar 11, 2008 04:18PM
To: ChasityB
Hi, i'm not going to pretend i know how hard it is to lose a child, but i do know how it feels to lose someone you dearly care about and i know it is hard. i was just wondering how many of you lost your child to S.I.D.S

by saza100, Apr 15, 2008 06:38AM
To: misskriss
hi my sympathy goes out to you i lost my son to cot death aged 6 months in june 2001 i was devastated felt there was no hope went through the what ifs life does go on you need to talk it helps loads i now have 2 beautiful boys and 6 weeks pregnant and going for a scan next week as i have been bleeding .with my children i asked to be put on the coni scheme (care of next infant) you see a consultant that speacialises in sids a health visitor visits every week i am provided with a mr10 monitor which simply attaches to babys belly and if they stop breathing an alarm goes off i wouldnt be without this if u want to chat email i dont mind i know how u feel

by MOMMY2BE85, Apr 24, 2008 07:11PM
To: MISSKRISS
HI,I JUST SIGNED ON TO THIS SITE TODAY AND I CAME ACROSS YOUR MESSASGE, AND I CAN HONESTLY SAY I KNOW WHAT YOUR GOING THRU. I LOST MY DAUGHTER AUG 11TH 2007 DUE TO SIDS.SHE WAS 3MONTHS. I WAS ONLY 21 WHEN IT HAPPENED AND I NEVER IN MY LIFE LOST ANYONE.I HAD TO GO TO COUNCILING. I BELEIVE IT HELPED ME A GREAT DEAL.MY HEART AND PRAYERS GO OUT TO YOU.

by Spartakos, May 23, 2008 09:55AM
Hi, my twins was born early in 28 weeks of my wife pregnancy in 15 May 2008, Spartakos 1100 gr and Kostantinos 900 gr, they had problems from day one because they were very wick and except the medications we couldn't do anything for them.
After 7 days yesterday 22/05 Kostantinos at 09:00 hours had a sudden inward bleeding all over his bobby and he pass away at 13:05.
Spartakos is still fighting....please pray for my baby, I don’t know what I will do if I will lose him too.

by jem706, Jun 05, 2008 10:07AM
To: Misskriss
my heart really goes out to you. but i know that God would give you grace and comfort. one of the most painful experiences in life is to loose a child of your own. i lost mine too in march last year and it still gets to me till date. but i have being comforted by God. i know you will be faced with crying sometimes pls allow the tears to flow it will heal you. also meet people who have had the same experiences they would really help you. pray a lot it would really be a source of comfort.

by Spazzswife, Jun 11, 2008 02:26PM
To: Misskriss
I am so sorry for your loss. I lost my daughter to SIDS 16 years ago when she was 4 months. It was a very difficult thing to say the least. It takes so long to recover. If you hold in the greif it will come out in different areas of you life. I did some other things that really helped me. If you would like to email me Id be happy to talk to you. ***@****

by suzoola, Jun 13, 2008 01:10PM
To: Misskriss
I am so sorry for your loss.  I lost my daughter in 1985 to SIDS.  The Grief Recovery Handbook helped me so much, however it may be too soon for you on that one.  You really do have to feel this.  I agree with Spazzswife, if you just try to be "be strong" and "hold it in" the pain will manifest in other areas of your life.  It took me until 2004 to find the Grief Recovery and amazingly enough, when i went through the process I found there was something I had not dealt with in all the 20 years regarding her death.  The experience of losing a child forever changed me as a person and especially as a mother, but not all those changes were bad.  Please email me directly anytime.  I felt so alone when it first happened to me.  No one else really "gets it" if they didn't lose a child this way.

by cathy367, Jun 26, 2008 04:17AM
To: misskriss
Hi i joined today and your story is the first one i've read and it breaks my heart. I'm am so so sorry for your loss. I wish i could cash a spell to take your pain away but i can't, all i can say is take one day at a time that's all you can do. Coming onto this site has taken me back 17 years and re-opened my old wounds. I woke one morning to find my little boy Danny had passed away all alone. How did i cope i'll never know. I had 2 miscarriges befor him so when he arrived i was over the moon, can you imagine how i felt when i lost him. Of course you can and so can thousands of other people. I had no one to help me. There were so many questions i needed answering and even when they were answerd it wasn't enough. Why, how, i blamed myself and probrably still do.
I wish i'd had a site like this i had nothing. What i did was cry and cry and cry. I talked about it until i was Blue in the face and spent all my time sitting t his grave. That was my way of dealing with it.
I already had a 2 year old and people would say thank yourself lucky you have a child. There are so many stupid people out there, that was the wrong thing to say. It was an awful time and wouldn't wish it on anyone but time is a great healer. Get through one day at a time. Wait until your body is ready before you try again it will happen. I went on to have 2 more daughters so i have 3 girls. I was glad i didn't have another boy, he was the only one i wanted and that was it. He's pictures hand around the house and i take to him always. Come on here and pour your heart out write how you feel to get it out of your system. People here seem very kind and will help what ever way they can. Be brave x
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