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My Doctor Can't Seem To Figure It Out

by kbug72, Feb 14, 2008 03:55AM
Hi,

Last mid-September I started having really bad leg pains. It started in my knees (both at the same time) and the next day it moved to my lower back. The next day it was in my neck and shoulders. The pain was so bad that when my husband moved in the bed I would get upset at him for hurting me. After about three days the pain stayed in my thighs with the occasional sharp pain deep in my left thigh. I also had a pulled groin muscle that I don't remember hurting. Before it started I was having general fatigue.

I get a lot of muscle twitching. My eyelids are terrible for this. A few years ago I had an eye twitch for 6 months straight. I also get them in my arms, nose and hands. More of an annoyance than anything.

I have a sharp pain in my lower chest, left of my sternum on my ribs. My doctor seemed convinced that it's my stomach. I'm not. My ribs feel bruised when i touch them. The pain comes and goes and I've had it for at least 10 years. When I was having the bad pain it was constant.

Right now my leg pains have subsided but the chest pain has come back. I read about allodynia. It sounds the same.

I have eczema on both my calves and shins.

My right big to turns bluish sometimes. I get very cold hands and feet as well.

I started getting an itch on my back. Once while I was vacuuming and once while I was in the shower. It was intense like someone put lye on my back.

I get very sore patches of skin sometimes. Usually one patch on one of my arms or legs or on my shoulder. It hurts to touch and to have clothes rub against it.

I get a very sharp pain behind my ears. Sharp enough to make me wince. I also have tinnitus and sometimes it gives me a deaf sensation in one ear and then it rings. It's in the same ear that I get constant infections and also have a perforation in (it squeaks when I blow my nose)

I have a runny nose and post-nasal drip all the time. I'm constantly blowing my nose (that could be attributed to my pets)

I get TMJ symptoms every once in awhile and I am forever clenching my teeth to the point that they are loosening and wearing down. I got a bite guard from the dentist but it's too uncomfortable and I can't wear it in the daytime when I'm really clenching.

I don't sleep very well. (it's 4:45 am as I am typing this).

I had to quit my factory job because I physically couldn't take it anymore. I was having a hard time getting out of bed in the morning because I was stiff and sore.

My doctor put me in the hospital last September under the assumption that I was having stomach problems but I had a battery of tests that came up negative. I had a bone scan, xrays, ultrasounds and a million blood tests. I was tested for rheumatoid arthritis but that was on the borderline and the second test was negative. The only thing that was found was a cyst in my left breast.

The pain in my ribs has always been brushed off by doctors. One doctor told me that I don't have anything in that location that should hurt. I'm fed up and need answers. I keep getting depressed and don't leave the house much anymore.

I'm not in as much pain as last year but I fear that it's coming back because my rib pain isn't going away and I'm getting random pains that come and go. Yesterday it was my ankle. It hurt to walk on it for awhile and then it was fine. My hips do this a lot as well. I get bad pain in them and limp along and then it goes away like it never happened.

I'm sorry this is so long but I'm desperate for some help.

Thanks for reading and I appreciate any responses.
Member Comments

by kbug72, Feb 14, 2008 04:01AM
To: PS
I forgot some things -

sometimes my eyes seem to vibrate when I'm trying to read close up. I don't read much anymore.
I also had a one time occurrence of visual migraine symptoms without the headache.
I get occasional pain in my lower teeth, below the gums. That pain lasts a few days.

I'm sure I'm forgetting something. The symptoms list is pretty long and it's making me feel like I'm crazy.

thanks.

by kbug72, Feb 14, 2008 04:04AM
To: darn
I wish you could edit these things so I don't have to keep posting and looking like a fool....anyway.

-pain behind my collarbone
-day before I went to the hospital I had pain go up the front of my neck and under my chin.
-pain in knuckles sometimes
-sore scalp sometimes
-doc thought I was hypoglycemic but I thought that was because of the glucose tolerance test.

I hope that's all.

by kbug72, May 12, 2008 03:46PM
i guess no one looked at this post but here's an update anyway.
i have been diagnosed with a hiatal hernia, a PFO and a connective tissue disease.

by cathrynliz, Jun 15, 2008 09:33PM
To: kbug72
That's sounds awful!  I get strange pains, too, but not as severe or persistent as your's.  Do you know about allodynia?  I just discovered it when searching for answers to my strange pains.  It sounds like something you might want to look into.  I got a lot of information on it from ivilliage.com.

Also, it sounds like it has some symptoms in common with fibromyalgia.  

Wishing you luck,

Cathrynliz

by Islands10, Jun 19, 2008 12:48AM
To: kbug72
I'm ptetty convinced you have Fibromyalgia...........I share most of your symptoms and have for 30 years now.........have you read about it?