anyone out there know about small fiber neuropathy

[kittykellieanne]

Im lost and sad over this . I have been suffering for over 5 years now... I want to live life again without the pain.. I have tried all the antidepressants.. NOTHING WORKS...went to the doc again today telling her that I cant even sit for more then 10 minutes anymore.. almost cant drive anymore.. cant sleep because my legs wont stay still and they HURT SO BAD.... they keep telling me narcotics wont work.... why wont they let me try>>??? i dont get it... has anyone found relief from this!!?? please... im desperate!

[billyo]

I have been diagnosed SFN 2-2008, by a QSART Test. have had terrible feet pain, progresses into both leg pain, specially when feet are BAD. I have had alot of meds. nothing works like you, I got small,short relief from epidurals in spine. Pain Patch did help, but i cannot wear at night, and live forever with them. will get back later, must get my 5 year old now.  thanks billyo.

[auntb41164]

Hi kitty, Have you tried Lyrica...I have peripheral neuropathy...The lyrica gives me some relief ..I also take neurotin..I dont like the neurotn as much makes me feel weird...Both medicenes are expensive..keep in touch..God Bless auntb41164

[sofa weight]

I may or may not have SFN, but i do have some kind of neuropathy. I do take narcotics for the pain in addition to lots of lyrica and a small amt or amytripiline. antidepressants don't work for me, but narcotics do help me a lot. it seems like with the lyrica and such, I still have the pain but it isn't as overwhelming or i am too loopy from lyrica to care, but when I reduced the lyrica dosage and added in fentanyl patch, the pain was significantly reduced. then again, It isn't for certain that I have SFN, but most of my pain is from neuropathy of some sort and for me at least, narcotics definitely help and adding those in enabled me to reduce he amt of lyrica that I take and that enabled me to be less loopy.

[bugbarb]

I call it "atypical idopathic small fiber sensory neuropathy".....sounds serioous...
I got up to 400 mg lyrica and that wasn't enough. Added klonopin and that helped but i don't remember much about the three months I took that combo.  I demanded my brain back and grudginly was transitioned to neurontin.  I am on 4x300mg daily and sometimes take 5 pills.  Still take the clonopin although I am going to ask to get off it too, as it does me no good except for the .....I don't want to care about what my husband says....and I take my dose and everything is fine.....Oh yeah...I am on a handful of psych meds......started those prior to the neuropathy

I believe this is a reincarnation of Lyme disease. I was disabled by it 11 years ago, presented like M.S,  Was on antibiotics for 6 years and made an astounding recovery.  Not 100% neurologically healed but over 90% of what I was.  I believe this is either a relapse or a reinfection.  I have had every blood test under the sun excpet another MRI and I have been proclaimed healthy as far as they can tell. They are wrong. I just started seeing my old ":lyme doctor" from 10 years ago and he understands that I am not ok.

[patsy10]

Have you been tested for lyme disease?

[sofa weight]

has your doctor gotten you any topical medications for the neuropaty? Mine ordered some for me. It works pretty well. I put it on the areas where the nerves feel raw. then.. tah dah. they don' feel raw anymore. :)