Joint Pain, Swelling, Fatigue

[RipleyLove]

I am seventeen years old.

Over the past several months (probably since late October or early November,) I've been having severe joint pain and swelling, accompanied by chronic fatigue, headaches, limited range in movement, and occasional fever and/or nausea. I also have a very hard time sleeping, and have experienced what feel like heart palpitations, or racing of the heart at completely sporadic  times. I've been to the doctor four times for this, and two rounds of bloodwork have been done. The first round came back negative for Lyme, Lupus, Thyroid disease, Arthritis, Fibromyalgia and other similar disorders. I am awaiting the results of the second round of bloodwork, but even as I type, I am in extreme discomfort, and am very tired, after even 9 hours of sleep on a regular sleeping schedule.

About a week before this began, I came down with a bad virus that included vomiting, a high fever, and a strange rash all over my body. It lasted only a few days, and  the rash subsided around the time that my symptoms started. Doctors initially thought that this onset of symptoms was caused by this virus, but it is February now, and they say it has gone on too long to be viral. I have an appointment with a Rheumatologist on Thursday the 22nd of February, and I hope he will be able to enlighten me as to what it is I have. This constant discomfort is getting old...I feel like a 70 year old woman, and I'm only 17.

Does anyone have any ideas on what this might be? Does bloodwork for diseases like Lupus and Lyme often come back negative when in fact a person has the disease? I would really appreciate some input, as the doctors seem to have no idea what's going on.

[Mikkimoe]

Sounds like RA to me - it took them 4 months to figure mine out. Sometime the RA factor test is negative at first. It is probably what they call Juvinal Rheumatoid Arthritis due to your age. They jave some pretty good drugs these days - I'm on Enbrel - it's great

Get a good Rheumatolgist - good luck

[Jboy284]

hey im having alot of the same problems u are, im a 17 year old male and i have alot of pain in my wrists and back and neck. i have alot of cracking in my joints and it causes pain all over my body. do u feel sharp pains shoot through ur stomach alot? i feel it all the time and the doctors cant seem to find out whats wrong with me either. i know how u feel, trust me.

[srolf11]

I am in a very similar situation to you, but I'm 32, but feel like I'm 82! Since the beginning of October I've had a fever (anywhere from 99.5-102, everyday), joint pain and extreme fatigue. Doctors have done a ton of blood tests and have said I have mono and parvovirus B19.  I've had several rounds of tests run and seen my normal doc, an infectious disease doc (which said it was all allergies!) and a rheumatologist. The rheumatologist has ruled out RA and lupus and is now sending me to the university hospital a few hours away b/c she knows it's something more than just the mono and parvo, but doesn't know what.

What did your rheumatologist say?

[Only_Name_Left]

Can i join the club? I'm a 17 year old female also but i've had these same symptoms since i was 13. yes it sucks. Heart racing, short breathing, joint swelling, redness around your joints, limited movement, CONSTANT pain and discomfort, acheing, fatigue, SO tired all the time, no sleep, anxiety, stiffness......so much more.... This condition must be horribly unhealthy because we cant get excersice LOL   ...I was diagnosed with Erlos Danlos Syndrom..Its like...all your joints and ligaments are  too stretchy and loose that all your muscles and bones actually have to make up for what your ligaments arent doing to hold your joints in place. and yes. it causes sever discomfort. and it doesnt show on blood tests.  Test yourself. See how far you can bend your fingers, how low you can limbo, pop things out of joint? thats a def. of EDS. Good Luck, but don't brake anything! maybe i'm the only one who can bend into a pretzel.

[rohit_786]

I like to join this thread , i am having similar symptoms for last 2 years  and now from past 2 months it is being horrible . Just start some background i was diagnosed Hypothyroid last 2 years back since then struggling with all kind of symptoms . My level is normal , my doctor ran all kind of test all came back negative accept thyroid antibody.
RA negative , Lupus negative  and others too.
Please keep me in loop for any solution you find for joint and muscles ache issue.

[bewildered444]

after weeks on the net, your symptoms sound the closest to mine, after blood test, x rays etc, all they can find is borderline RA, and one of the test for autoantibody came back as 'inbetween', i thought that i had swollen lymph nodes (which i did for months) but when Dr checked today he said they weren't swollen? baffled me as the pain there is awful, (back of neck and groin) he's refered me to the rheumatologist, but i'm left feeling a bit baffled? my ankles and knees are the most painful, my shoulders are painful in the morning and i feel like i'm 100 years old! i also get palpitations and shortness of breath? i know nothing about RA but i'm constantly fatigued and need to sit down and rest several times a day (i get very hot too) no night sweats though, otherwise i'm not overweight, dont smoke or even drink! this has been ongoing since last october and i have had every single cold/sickness bug etc going, i suffer constant sore throats too, but been tested for glandular fever etc and all clear.  i'm puzzled by the groin pain, although i was diagnosed with symphasis pubis dysfunction