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Neurology Community
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury
Atypical Facial Pain
by dzylizz, Feb 19, 2008 10:01PM
I have been diagnosed with Atypical Facial Pain. I have had severe pain and numbness on the right side of my face for almost 4 years now. They have ruled out Trigeminal Neuralgia because of the numbness and ruled out Bell's Palsy because of the pain. I have had CT scans of my sinues and 5 different MRI's with contrast and w/o. All came up clear. They have ruled out MS. I even had a lumbar puncture to test what I'm not sure (but neurologist at the time said I needed to). I had a bone scan recently (just in case it wasn't something in my bones, the only thing they found out with that is that I have arthritis) I have had more blood taken for test than I would have donated in a year's time. I have even been tested for Lyme disease. I have been on 5 different types of pain medication including Tegretol (which I found out I am allergic to) and Lyrica. The only thing that has helped in the past year has been Nortriptyline, but every few months I have to up the dose because the pain starts coming back. The numbness is alway there, but the pain comes and goes, it is sometimes triggered by cold and most definitely by stress. I have seen 4 different neurologist. I had tried other message boards to see if I am the only person out there with these problems with no responses.
Can ANYBODY help me???
Can ANYBODY help me???
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My symptoms started about 4 years ago. Since then, I was diagnosised with Chronic Sinusitis, when treatment didn't work (multiple times), diagnosised with Migraines. Of course, no change.
I went to a Neurologist who diagnosised Hemicrania Continua (you might want to google this). Symptoms matched up, but treatment (Indomethicin and Neurotin). failed.
At this point, my Neurologist has set me up with a Pain Clinic.
Are there certain triggers that set you off (mine is hormnes & weather changes).
If you hear of anything that may help , or even a diagnosis, please let me know.
Good Luck and hang in there!!!