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Respiratory Disorders Community

This patient support community is for discussions relating to lung and respiratory issues, allergies, asthma, bronchitis, colds/flu, chronic cough, COPD, cystic fibrosis, emphysema, fibrosis, lung abscess, nasal polyps, pleurisy, pneumonia, sarcoidosis, sinusitis, and tuberculosis.
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Unknown reason for PE

by rroniger, Feb 26, 2008 04:15PM
Back in December, I had 2 episodes that led me to the hospital, and ultimately, was diagnosed with a PE.  After further testing, there was nothing revealed that showed the cause.  I was therapeutic on Coumadin when I had another episode which revealed another PE about a month later.  As far as I know, they have run every known test which all come back negative.  Every scan that has been run reveal no DVT.  I have been placed on Lovenox indefinitely and had an IVC filter put in (even though they are not sure where the emboli are coming from).  Are there any other tests I can inquire about?  Is it common to have a PE with no evidence of a DVT?  Am I realisticly looking at Lovenox for the rest of my life?  I am a 32 year old male with no prior history and according to the doctors in good health.  A few women on my mother's side have had DVT's around childbirth, but to my knowledge, noone has shown any genetic predisposition that can be identified.
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