myasthenia gravis

[subha1978]

I am 29 years old female. i am suffering from myasthenia gravis for the past one year, the first sympton include ptosis of right eyelid, then i was diagnosed of having a thymoma of about 4 cm. The doctors suggested of getting an thymectomy done, but as i am very scared i refused to go for it. Now I am treated by an endocrinologist with harmone thyrapy and ldn. I am taking ldn for the past one month. But the symptoms of myasthenia are increasing, muscles of mouth and throat are afftected. Should I wait for the ldn to work or should i go for a surgery?  Please advice.

[bhups1]

hi,could you please specify what hormone therapy(idn?) you are receiving?

[Abhijeet Deshmukh, MD]

Dear Subha,


Please do not let emotions interfere with your treatment. Now a days, the surgery has become minimally invasive. I would like you to read this article on why minimally invasive surgery is preferred. This article compares open surgery and minimally invasive surgery.

http://www.ncbi.nlm.nih.gov/pubmed/18297352?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

LDN will not help you much. Though it is a known to be useful in myasthenia, we are not sure how much it will help with a thymoma of 4 cm.

I hope you go through all the pros and cons and take a decision soon.

Regards

[subha1978]

dear dr, thanks for your repy, could u suggest me a best hospital for doing mnmal invasive surgery for thymoma.