NS (Nevus Sebaceous)

[pepsi694]

My 13 year old son with autism was recently diagnosed with NS.  I researched and found some alarming information about it.  I read that "this birthmark can be associated with other health problems, including birth defects affecting the eye, skeleton, heart and urgenital tract, which your doctor should examine for.  There is a very rare "nevus sebaceous of Jadassohn syndrome," consisting of a linear sebaceous nevus, seizures, and mental retardation.  For this reason it is generally recommended that children with sebaceous nevi have a neurological assessment."  

If you know of anyone with a child diagnosed with autism and has NS, please let me know.  Where there is there any connection with the two or mental retardation?  

We will be meeting with a pediatric surgeon for a consultation next week.

[mandycamp]

Crazy enough i have a 6 year old that has autism. but he does not have a nevus. But his younger brother was born with a very large nevus sebaceous on his head and face. I know thats not exactly what you were looking for but i am really looking for ppl to talk to bout my younger sons nevi or my older sons autism. my email id ***@****

[Brysonsdad]

Being that this is very rare it is hard to find any other parents in the same shoes. I do not know if my son has autism yet or not being that he is only 5 months old. He does have the NS and concerns me as well after reading the possible associated illnesses/symptoms. The dermatologist failed to mention any of this and just said that it was pretty much a skin thing that needed to be removed around puberty, but I don't want him running around with these warts on his head that could lead to other problems. Also the dermatologist didn't see it necessary to run any other tests however the sites I have visited say that neurological tests need to be run to rule out an developmental issues or brain defects.

Any ideas, don't know if you will even still get this being such and old posting but I figured I would give it a shot and see if you had learned anything else.

Thanks
Brandon