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Undiagnosed Symptoms Community
This patient support community is for discussions relating to undiagnosed symptoms, breathing difficulties, feeling cold, cough, diarrhea, dizziness, fainting, fever, indigestion, itching, nausea, numbness, pain (chronic), paralysis, rash, sweating, swelling, urination problems, and vomiting.
Help, I have all diffrent problems all Test come back Negative.
by ella27, Mar 01, 2008 10:25PM
Help!! I don't even know were I should post this: I am a 27yr old female
In Aug of 07 my face and eyes including lids started to swell. My left eye then my right eye went blood shot. Went to eye Dr. He said that I had orbital cellulites. At this time to I had a raging headache. He said he could see the swelling behind my orbitals and sent me for an MRI and Blood work. I had Erlicha the year before and was hospitalized for a week. He thought that it was coming back. Both test came back negative. He knew something was not right because he had seen the swelling and the MRI said everything was fine. Due to the pressure what I believe I started having a lot of problems, sun light hurts causes headache to get worse, noise, fast movement, I also had a change in eye sight, I had hot and cold sweats, I was having trouble remembering, daily function had become almost impossible, (EX. I put my bra on over top of my pajamas) stopping in a conversation could not remember what I was talking about. I was also getting twitches in my right thumb. I have alot of trouble sleeping headaches were that bad. That is most of my symptoms at that time. My eye Doctor sent me to an ear, nose, and throat Dr. He said nothing was wrong from what he could see. Also a fever.
Next he sent me to a Neurologist. My Neurologist Doctor sent me for more blood work and an LP both came back negative. At this time he had also started me on Topamax 25mg. With that not helping they started me on Amitriptaline 10 mg. That over the past couple of months came up to 100mg and also 25mg of Topamax. I have trouble going out anywhere my headache gets worse. This is a headache that I have had since the being. I have been up to Boston twice to see two different Doctors up there. With the following of that I have had two more MRI.
They have also switched me and have me on Depakote 500mg twice a day and 50 mg of Amitriptaline.
When I try to fall asleep at night though I feel like my switch is not working. I don't fall to sleep right away with the Amitriptaline. When I close my eyes I feel my pulse in my head pounding I feel like I am falling. I also wake up when the headaches get really bad.
When I also went for the MRI I got worse. I am not claustrophobic, but with the sounds and my eyes closed and with the lights I got really sick an notion feeling with a bad headache. The next day after that my face was swollen along with my eye lids and the whites of my eye. I do not were my contacts anymore to eliminate them as a problem.
Also a week after my last menstrual cycle a spotted not once but two days. Went to ER they did blood work and ultrasound and everything came back normal. Two days after that I was bleeding again this time it was more. I had to put a pad on. Went to OBGYN same day. She could see vaginal bleeding but did not know were it was coming from. Mind you two days prior I had an ultrasound and there was no indication of any future or present bleeding. She did a paps mer and said she would let me know. That also came back negative.
My Neurologist is also sending me for a sleep study to see if that has anything at all. I also forgot and please forgive me mind is not processioning things right but:
When my headaches also get worse is the mint I try to do work. I have gained almost fifty pounds. I get real dizzy. A couple of times people have caught me. Yet I have never past out. To describe my headache it is more to the right now and follows to the back. It fells like an elastic band that is being tighten and there is so much pain that is all you have. I also get a ringing in my ears more now then I had before.
To top this all off. The last couple of days I have had a soar throat. Today I noticed my tongue was not right. Went back to ER. They say I have got Thrush.
To me something is not right. I have to many odd symptoms. I feel like I belong on House. My eye doctor even calls me his medical mystery.
In the past couple of years though I have had:
H. pylori
Ericha(tick disease)
eye sight change
was diagnosed with IBS but they didn't know what was wrong so they told me that is what I have
I was also diagnosed Lactose intolerant even though I have always drank milk and never had a problem
asthma, bronchitis
Lyme's disease about 24yrs ago (was one of the first cases in MASS)
I get a pain in my side they say is a muscle but it hurts when I am sick on my right side.
when I was pregnant with my son I had what they thought was a gull bladder attach.
I also have a stage two almost stage three Spondylolisthesis. I think that is the right name.
My Blood Pressure does vary when I go in most of the time it is about 106 over 62. Last Time I went to the Hospital though it was 131 over 88 and I have had also a higher number before on top.
If anyone could help with this thanks!! I tried to gibe you as much or maybe to much info. Just something is wrong and I have two many symptoms. Any clue as to what I might have or test I should do? I also didn't even know what form I should put this in?
Other then that everything as fare as I know is normal. Yes they have also done a glucose test, and probably every other test you can think off. They also have gone above because I work with animals. work on Dairy farm but animals there are not imported we are a closed herd. Animals are also tested.
In Aug of 07 my face and eyes including lids started to swell. My left eye then my right eye went blood shot. Went to eye Dr. He said that I had orbital cellulites. At this time to I had a raging headache. He said he could see the swelling behind my orbitals and sent me for an MRI and Blood work. I had Erlicha the year before and was hospitalized for a week. He thought that it was coming back. Both test came back negative. He knew something was not right because he had seen the swelling and the MRI said everything was fine. Due to the pressure what I believe I started having a lot of problems, sun light hurts causes headache to get worse, noise, fast movement, I also had a change in eye sight, I had hot and cold sweats, I was having trouble remembering, daily function had become almost impossible, (EX. I put my bra on over top of my pajamas) stopping in a conversation could not remember what I was talking about. I was also getting twitches in my right thumb. I have alot of trouble sleeping headaches were that bad. That is most of my symptoms at that time. My eye Doctor sent me to an ear, nose, and throat Dr. He said nothing was wrong from what he could see. Also a fever.
Next he sent me to a Neurologist. My Neurologist Doctor sent me for more blood work and an LP both came back negative. At this time he had also started me on Topamax 25mg. With that not helping they started me on Amitriptaline 10 mg. That over the past couple of months came up to 100mg and also 25mg of Topamax. I have trouble going out anywhere my headache gets worse. This is a headache that I have had since the being. I have been up to Boston twice to see two different Doctors up there. With the following of that I have had two more MRI.
They have also switched me and have me on Depakote 500mg twice a day and 50 mg of Amitriptaline.
When I try to fall asleep at night though I feel like my switch is not working. I don't fall to sleep right away with the Amitriptaline. When I close my eyes I feel my pulse in my head pounding I feel like I am falling. I also wake up when the headaches get really bad.
When I also went for the MRI I got worse. I am not claustrophobic, but with the sounds and my eyes closed and with the lights I got really sick an notion feeling with a bad headache. The next day after that my face was swollen along with my eye lids and the whites of my eye. I do not were my contacts anymore to eliminate them as a problem.
Also a week after my last menstrual cycle a spotted not once but two days. Went to ER they did blood work and ultrasound and everything came back normal. Two days after that I was bleeding again this time it was more. I had to put a pad on. Went to OBGYN same day. She could see vaginal bleeding but did not know were it was coming from. Mind you two days prior I had an ultrasound and there was no indication of any future or present bleeding. She did a paps mer and said she would let me know. That also came back negative.
My Neurologist is also sending me for a sleep study to see if that has anything at all. I also forgot and please forgive me mind is not processioning things right but:
When my headaches also get worse is the mint I try to do work. I have gained almost fifty pounds. I get real dizzy. A couple of times people have caught me. Yet I have never past out. To describe my headache it is more to the right now and follows to the back. It fells like an elastic band that is being tighten and there is so much pain that is all you have. I also get a ringing in my ears more now then I had before.
To top this all off. The last couple of days I have had a soar throat. Today I noticed my tongue was not right. Went back to ER. They say I have got Thrush.
To me something is not right. I have to many odd symptoms. I feel like I belong on House. My eye doctor even calls me his medical mystery.
In the past couple of years though I have had:
H. pylori
Ericha(tick disease)
eye sight change
was diagnosed with IBS but they didn't know what was wrong so they told me that is what I have
I was also diagnosed Lactose intolerant even though I have always drank milk and never had a problem
asthma, bronchitis
Lyme's disease about 24yrs ago (was one of the first cases in MASS)
I get a pain in my side they say is a muscle but it hurts when I am sick on my right side.
when I was pregnant with my son I had what they thought was a gull bladder attach.
I also have a stage two almost stage three Spondylolisthesis. I think that is the right name.
My Blood Pressure does vary when I go in most of the time it is about 106 over 62. Last Time I went to the Hospital though it was 131 over 88 and I have had also a higher number before on top.
If anyone could help with this thanks!! I tried to gibe you as much or maybe to much info. Just something is wrong and I have two many symptoms. Any clue as to what I might have or test I should do? I also didn't even know what form I should put this in?
Other then that everything as fare as I know is normal. Yes they have also done a glucose test, and probably every other test you can think off. They also have gone above because I work with animals. work on Dairy farm but animals there are not imported we are a closed herd. Animals are also tested.
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Then my Doctor said we would go from there