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Livedo R whats happening?
by Mclittle, Mar 07, 2008 02:23AM
I am a 26 year old female. I am anemic. Originally I went to see my doc because I always got painful canker sores in my mouth and I had nubness in my fingers and toes. I have high ANAs(antinuclear antibodies) and I was diagnosed with Livedo Reticularis, and Raynauds about a year ago.I have done at least 3 blood test for diffenent types of doctors, that were negative for lupus. The Rheumatologist told me to take asprin. I don't do that.
Now I'm getting these bumps inside of my mouth that are not painful and they go away after a day or two. I also get joint pain mostly in my elbow and knee joints. The joint pain (it comes and goes), is what bothers me the most right now and I am wanting to know if it is because of the Livedo R.
Thanks for reading thanks for your time,and please give me a clue.
Now I'm getting these bumps inside of my mouth that are not painful and they go away after a day or two. I also get joint pain mostly in my elbow and knee joints. The joint pain (it comes and goes), is what bothers me the most right now and I am wanting to know if it is because of the Livedo R.
Thanks for reading thanks for your time,and please give me a clue.
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Sorry you have these problems gal, I've had the sores in my mouth (usually painless) all my life and the livedo reticularis for years without knowing what it was. I also have Raynaud's and immune system problems, but had been told they were probably associated with something I got about 18 months ago called RSD.
Lately though I have gotten painful ulcers "down there" and did more research... and came up with a reasonable and relatively unknown in the US disease... Behcets. It explains a lot of things and there's a good web site I would recommend you check out:
http://www.behcets.com/
They have a good doctor referral page (although... if you get no results for your state, just pull up everything) I found a very kind doctor in my own town who agreed to see me at no charge, but have a new heart problem and haven't made it in to see him yet.
From what I can tell the joint pain and other symptoms are from the blood vessels being inflamed and people usually have some inflamation of their eyes as well. The disease is much more common in people along what was called the "silk road" meaning the mediteranean area. I don't have any ancestry that I know of from that region but I do have a rare blood type B- that is much more common in those area of the world.
I hope you have been feeling OK and since your post went so long without any answer I hope you get a message telling you that I responded. Take good care of yourself! SBF