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I am now going to seek a second opinion from a urologist given the progression of my symptoms over time. In the mean time, if anyone can relate to these symptoms and offer some kind of advice or guidance that would be much appreciated. I am sufferring from this 24 hours a day 7 days a week and it is destroying my quality of life. The most frustrating thing is that as yet no one has been able to give me a definitive diagnosis of what this is.
It seems that you have been under several intensive tests already and all these have been negative. Do you have any known allergies before? Have you been assessed along this line? Although you haven’t mentioned of a rash or any lesions in the area, an allergic reaction to some unknown trigger may be a differential. Also, this may sound like a sensory problem. An EMG however was done and it was negative (is this correct).I understand this may be frustrating in your case and I agree that a second opinion may help.
Was there any history of trauma or injury to th area?
Any prior surgery or instrumentation?
Engaging in alternative forms of therapy such as acupuncture and physical therapy may also help alleviate your symptoms.
Could you comment more on your thoughts about allergies in this situation?
Allergic dermatitis and contact dermatitis are differentials in your case.Itchiness and weeping excoriations may be associated with dermatitis. Some triggers like soaps,lotions,creams, clothing that are in constant contact with the area may trigger certain reactions.Allergic reactions may present with a burning or tingling sensation.Have you been assessed along this line?
Also, you have mentioned of difficulty initiating urination ( is this correct?).You may discuss with your physician chronic prostatitis and prostatodynia.These conditions may present with absence of bacterial load in the urine but may persistently present with discomfort in the form of burning or pain in the groin area.
Is it possible that there was a one-time allergic response that caused this neuropathic pain? I had contact dermatitis before this started at the bottom/back of my thighs.
Sitting on hard chairs aggravates the symptoms, especially the burning, clammy sensation in the upper thighs and scrotum (sometimes it feels like a blow torch is burning my scrotum, although skin remains normal in appearance). Possible related symptom is a slight but constant numbness in my right thigh above my knee and an occasional dull pain in the inside of my right thigh. No discharges, sores or rashes ever presented (other than for an occasional pimple). All the various symptoms seem to occur cyclically, with brief symptom free periods when I feel very euphoric.
As these problems developed a few day after a sexual encounter, I was initially treated with a range of STD treatments (antibiotic, parasitic and fungal) even though all tests were negative. My prostrate is normal and annual full blood