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Autoimmune Disorders Community
This is an un-mediated Patient-to-Patient Forum only. This forum is for questions and support regarding Autoimmune topics such as: Acute disseminated encephalomyelitis (ADEM), Addison's disease, Ankylosing spondylitis, Antiphospholipid antibody syndrome (APS), Aplastic anemia, Autoimmune hepatitis, Autoimmune Oophoritis, Celiac disease, Crohn's disease, Diabetes mellitus type 1, Gestational pemphigoid, Goodpasture's syndrome, Graves' disease, Guillain-Barré syndrome (GBS), Hashimoto's disease, Idiopathic thrombocytopenic purpura, Kawasaki's Disease,
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'Sjogren's Syndrome'
by cilycoed, Mar 08, 2008 04:38AM
Sorry, I put this on the wrong forum.
[Feb 27, 2008 08:38PM]
After a couple of years of infusions of Pamisol and then Intergram, blood tests some which have gone overseas. There was talk of paraproteins, Multiple Myeloma and even Amyloid, very low platelets etc etc, at last a result! I have been told that I have a 'funny' antibody which has caused Sjogren's Syndrome, however did I get it and is there a cure for it?
I am 65 years of age, with dry mouth and itchy eyes, peripheral neuropathy [very bad in both legs and feet and right hand, just slightly in L hand] Dry skin, actually most of my body is dry. I thought it was just part of the natural aging proccess. Itchy face, frequent diarrhoea just about complete the picture.
I have four sons all have had heart issues, two now ok, but two still with Mitral Valve incompetency. A granddaughter with something on her skin which attacks her organs, like kidney, liver etc, [not sure of the spelling sorry] scerlious, something like that, might these things be connected.
My great grandmother suffered greatly with Rheumatoid Arthritis, is that part of it too.
What sort of treatment can I get to help alleviate the peripheral neuropathy, which is worsening.
Thanks
Cilycoed
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