blood clot in portal and superior mesenteric veins

[Akabler]

i am a 32 year old female who was diagnosed with portal vein thrombosis and smv thrombosis in october 2007. i am trying to find anyone with similar diagnosis or experiences to discuss condition with. i have been told this is pretty rare and so far have been unable to find anyone out there on other message boards. feeling pretty much all alone any info is appreciated

[CalGal]

I'm not sure these people on still on the board, but check here: http://www.robprince.net/dvt/forum.asp?action=list

When you get to the site, look in the late January dates.

Also, check for support boards for DVT - deep vein thrombosis. Sometimes people go there because they're not sure where else to post.

[Akabler]

thanks for the info! unfortunately still having trouble finding people who have a blood clot in same area. i really appreciated your help though

[80proof]

I,m 28 and have thrombosis of the superior mesenteric vein.   found problem 3-16-08. still trying to find why.

[80proof]

might be better to get at Paul_80proof***@****

[80proof]

then end was at yahoo

[vanss3L]

My boyfriend is in the hospital now, 1 week so far - diagnosed with portal thrombosis, a blood clot in the portal vein extending into the splenic and mesenteric veins.  It's been awful.  It started about 3 days before hospitalization, with pain in abdomen, just under rib cage.  A visit to the Dr. office for blood tests confirmed elevated liver enzymes. Assuming it was galbladder, Dr ordered CT scan @ hospital and when finding something questionable, they followed with an ultrasound which confirmed the blood clot.  He was hospitalized immediately, and given heparin and morphine for pain in which he got sick on.  Finally, given heparin, coumadin, and strong doses of vicaden he was able to get thru the pain.  Abdomen swollen and sore.  Can't eat much, nausea...  The pain killers caused him not to be able to eliminate so he was given a catheter and suppositories.  It's been a long week with not much information as to how he got this, why he got this, he is normally a healthy active guy of 54 years old. Never been in a hospital before!

[carsus]

Just discharged from hospital a couple of days ago. Admitted thru ER after several days of severe abdominal pain (just under rib cage), nausea & vomitiing. Diagnosed with clot in superior mesenteric vein. Given Heparin, morphine and since release on coumadin. Must be monitered while on blood thinner and will return to hospital for another CT-scan. Scary. Doctors have no answrers as to why, however I did have gastric bypass sugery 3 years ago...connected?

[vanss3L]

I hope you are on the mend.  Your symptoms are identical to my boyfriends, he is still being monitored and on Coumadin.  He ended up with a bad case of gout shortly after being released from the hospital and it's still acting up a bit.  Weird.  He still has the blood clot, he can feel it, but he is not in severe pain any longer.  Hopefully the Coumadin will dissolve the clot.  They said it could be 6 months.  It's been 2 1/2 months so far. Good Luck, and Get Well.