Ilestomy reversal with no J-Pouch

[charchar2003]

I have had an ilestomy for 5 years and am considering having it reversed, but with no J-pouch.  My surgeon wants to reattach the small intestine directly to my rectum.  Has anyone out there had this done, and if so, did you have good results?
Thanks!

[shooker]

i am considering the same thing, and would be interested in the answer.

[Isabelle1963]

My Partner is having the reversal from an ileostomy bag this weekend.  During his first surgery he had his small intestine attached to his rectum.  That has healed up but now he'll undergo re-attaching his stoma and close the hole to his ileostomy bag.  I'll let you know how things go if you like.  

Isabelle

[Maria24]

I would also be very interested in the resu8lts. gl to ure partner.

[Isabelle1963]

Thanks Maria, today's the day, so i'm very hopeful.  will get back online tonight to let you know the results

Isabelle

[Isabelle1963]

Well the procedure is done.  The surgery took approx 1 1/2 hours to close the ostomy and it went very well but the "after surgery" part is very painful.  Today is day one with only ice chips or clear fluid for him to drink.  He told me last night that the initial surgery [removal of large intestine] didn't hurt him as bad as this one.  I don't necessarily think that's all true because he was completely "out of it" on the first round, but this time he's awake the the acids from the stomach are going down his small intestines to his rectum now.  He didn't have that before so i suspect THAT'S what's painful.  rightfully so.  I'll post more as i get it

by the afternoon, they could listen with a stethoscope and heard that the bowels were already trying to kick in, which is a GREAT sign.  They tell me that that's one of the most common problems is getting the gut to kick in and work.  Usually that's what slows things down.

Isabelle

[charchar2003]

Isabelle, thanks so much for letting us know about your husband's surgery. I wish him well.  Can you please tell us why he had he ilestomy in the first place?  Ulcerative colitis is my thing.  And how old is your husband?

Charchar2003

[Isabelle1963]

he had uc for 7 years and became steroid dependent.  Without them he bled.  when he had a colonoscopy in Feb the decided that he had to make a decision because they found a growth.  Not a palp.  The took samples of it and luckily for us it was benign.  But the doctor told us that this time we were lucky.  He needed to make a quick decision on how to treat this, either remicaid or surgery.  When they explained the remicaid treatment, it didn't convince me that it was going to do much other than put his body through alot of work with no guarenteed results.  They said, "some people it works well on".  if they had said 80-90% of people it worked well on, it might have influenced me, but it sounded like a band-aid.  So we talked about it and we both agreed to "get rid of the problem" for good.  Therefore we had them schedule surgery right away.  He had the initial surgery on Feb 15th and now the reversal this weekend on the 25th.  

on the 26th he was up and walking [painfully], but walking.  that evening he had a bowel movement which is an EXCELLENT sign and should be celebrated because one of the biggest concerns is for the gut to kick in and process correctly.  If this doesn't kick in, then a tube is inserted down the nose to the stomach and gases are equalized.  [he had this done the last time]  

Today he was up walking the halls very fast!!!! and they finally started him on a fluid diet YAY!!!  now he just needs to keep the pain level down.  When they take him off the iv and demerol drip, he can come home.  But he has to be able to maintain a good level for oxygen, breathing, and passing gas or bowel movement before they let him go.  They're hoping for tomorrow evening.  ;o)

[Isabelle1963]

sorry, forgot to mention hubby is 44 years old

[charchar2003]

Isabelle,  Wow - sounds like your husband is progressing very nicely!  I am so surprised that he had the ilestomy for so short a period of time.  Mine was done in 2003 and the doctors told me I had to wait for at least a year or so before considering a reversal.  I was so scared of going through surgery again, that I've put it off for 5 years.  I'm sick to death of living with the ilestomy, however, and am ready for the reversal (I think).  Are you in the US?  I'm in Louisiana.  Just curious as to if the treatment would be the same.  I'm 58 years old, and want to have this done while I'm still "young" and able to recover quickly and fully.  Thank you so much for sharing your husband's experience.  I truly appreciate it and would love for you to keep me posted of his progress, if you have time.

[Isabelle1963]

Sorry for taking so long to post back to you on his progress.  Hubby is having problems with the recovery time.  They're telling him it will be approx 6 months before everything is functioning as it should and at this moment it's really hard.  He's losing weight and his anus muscle is working over time.  he's going back to the doctor to see how things are progressing, but i can tell you, this surgery to put everything back in order seems to be harder to recuperate from.  Not to give you any false hope or hopefully not talking you out of considering the surgery, because he really had no choice, but if you do decide to do this, please investigate with your doctors of EVERY possible problem that could go wrong.  Last night he got up to go to the bathroom approx 10-17 times to keep from having an accident.  I'm not sure this is normal, and if so, something needs to be given to him due to sore bottom.  He is weak at this point and can barely sit for any length of time due to the soreness.  I'll post back with what the doctor says today .