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Are Pineal Gland Tumors really a problem for Neurologists?
by Deb8Superstar, Mar 30, 2008 11:58PM
I was diagnosed last week as having a pineal Gland tumor.
I have had many of the same symptoms that I have seen posted on this site, and I too have been told that the Tumor is not the cause of my headaches, menstrual cycle problems, sleep disturbances, vision difficulties, and now, loss of feeling in my left arm. I never felt more disgusted, when I went to "the best neuro- surgeon" in the area, only to hear that my only option is the Gama knife, but even after the procedure, he couldn't guarantee that it would shrink the tumor, and I would have to wait a year and a half to two years to see the results.
I begin speaking to others in my community only to find out that this condition is not as rare, as my doctor would like for me to believe. I have now identified 9 other people in this county that have or have had brain tumors on their hormone glands.
So I began calling these people, some I knew , Some I did not. I felt like I struck gold. One woman I spoke with described my very experience down to the detail.
She had all the same symptoms, and given the same answers, everything from "wait and See", to "you must have it removed." Fortunately for her, Her husband was in the army and they were in the process of relocating. Once they arrived to their new destination ( with new Doctors) , her primary care doctor asked her why she was going to a Neurologist/ neurosurgeon? He explained to her, that if it was a tumor that she had on a glad , that maybe she should see a gland Doctor.
He referred her to on Endocrinologist. That was when her life turned completely around.
She was not understood, but put on a medication that shrank the tumor/ Cyst. She only had to take the pill 2 times a week, and all of her symptoms began to disappear with in 6months.
Granted she has had to take this medicine for the last 5 years, but her tumor has almost completely disappeared. And even better, her symptoms are gone.
The Endocrinologist did not belittle her symptoms, and justified her symptoms being consistent with a tumor on that particular gland.
This has given me a new found hope.
I refuse to settle for status quo, and would encourage you to do the same. I have learned from this experience, just because a doctor or surgeon is considered the best- if their diagnosis doesn’t jive with your instinct, back up and punt. I pray that God blesses you and gives you the strength to over come the challenges that lay before you.
I have had many of the same symptoms that I have seen posted on this site, and I too have been told that the Tumor is not the cause of my headaches, menstrual cycle problems, sleep disturbances, vision difficulties, and now, loss of feeling in my left arm. I never felt more disgusted, when I went to "the best neuro- surgeon" in the area, only to hear that my only option is the Gama knife, but even after the procedure, he couldn't guarantee that it would shrink the tumor, and I would have to wait a year and a half to two years to see the results.
I begin speaking to others in my community only to find out that this condition is not as rare, as my doctor would like for me to believe. I have now identified 9 other people in this county that have or have had brain tumors on their hormone glands.
So I began calling these people, some I knew , Some I did not. I felt like I struck gold. One woman I spoke with described my very experience down to the detail.
She had all the same symptoms, and given the same answers, everything from "wait and See", to "you must have it removed." Fortunately for her, Her husband was in the army and they were in the process of relocating. Once they arrived to their new destination ( with new Doctors) , her primary care doctor asked her why she was going to a Neurologist/ neurosurgeon? He explained to her, that if it was a tumor that she had on a glad , that maybe she should see a gland Doctor.
He referred her to on Endocrinologist. That was when her life turned completely around.
She was not understood, but put on a medication that shrank the tumor/ Cyst. She only had to take the pill 2 times a week, and all of her symptoms began to disappear with in 6months.
Granted she has had to take this medicine for the last 5 years, but her tumor has almost completely disappeared. And even better, her symptoms are gone.
The Endocrinologist did not belittle her symptoms, and justified her symptoms being consistent with a tumor on that particular gland.
This has given me a new found hope.
I refuse to settle for status quo, and would encourage you to do the same. I have learned from this experience, just because a doctor or surgeon is considered the best- if their diagnosis doesn’t jive with your instinct, back up and punt. I pray that God blesses you and gives you the strength to over come the challenges that lay before you.
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