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ALS Community
This patient support community is for discussions relating to Amyotrophic Lateral Sclerosis (ALS).
ALS Progression How fast ?
by ukcountess, Apr 02, 2008 03:26PM
I am still in process of confirmation that ALS is the actual diagnosis. MRI all neg, EMG/NCV neg but repeated a months later, now pending, no LP yet. Hospitalized w/new bilateral foot drop two months ago . Improved somewhat qw/leg splints and PT, but not fully functioning feet yet ( cannot spread toes or fully flex either foot, right is worse ) Now also have fasciliation constantly of right large toe. It gets worse when I put my feet up. In fact everything gets worse when I do that in the evening. Both wrists ( right worse ) and arms very weak so diffucult to even lift a magazine sometimes. Symptoms get worse w/increased activity of the musces as in/ after PT and after carrying a lightweight object. No facial or speech problems. Of course I still have numbness/sometimes severe pain and tingling of feet and hands.
cannot get follow up appointment w/neuro until 5/2/08. Feel that things are rapidly worsening. Over what period of time did you all really start to get severe disabling symptoms? Does everyone get swallowing/breathing problems?
cannot get follow up appointment w/neuro until 5/2/08. Feel that things are rapidly worsening. Over what period of time did you all really start to get severe disabling symptoms? Does everyone get swallowing/breathing problems?
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