Pain~ PM Dr. no help Idk where to go or what to do~

[scargirl]

I'm28yr old female 7 yr. traumatic brain injury from  terrible MVA ( trap in car) from this I suffer migranes, vertigo, light, sound sensitive etc.  1.5 yrs ago rear ended. PTSD and anxiety, but  buldings dics, bone spurs, and arthritis in neck, emg negative, going for a bone scan this month to rule out RSD possibility. Past ortho, past me of on PM I have had xrays, and mri's. noone will give me any more scripts for physical therapy says it wont help. I am doing healing touch. looking into medical massage,a nd acupuncture . just changed meds today to percocet 10 , robaxin, and trazadone i dont know if these will help i was just taking loritab ,10 ambien. 10  getting  about 1 hr sleep on ambien ha! / due to muscle spasms  pm put me on robaxin? i have been through every muscle relaxent except valium and soma helps the best but of course he said he wouldnt presribe it yet.
no nurotin, lyrica, ot anything of that nature works for me I beleieve they are called neuropathis drugs.
i take topomax, lexapro, klotopin evry day
prob is i have wicked insomnia, anxiey, tingling sensations in my elbow, numbness at time in my hand upper trap pain upper back pain neck stabbing, burning, spasms. u name it.
drs cant find anyhting really both the above mentioned. i dont think the newer drugs are good for my spsms/ or pain
afraiad to use fentanyl patch .  i do drive, ans do some things hen i have to i do not have a caregiver 24/7.
SOMEONE PLEASE TELL ME WHAT DO I DO?

[worried878]

That is a traumatci and sad story....there are lots of chronic pain patients on here...i have bone spurs and a fusion but do not think i have the disabilities that you have...what is it that you want to know?  perhaps someone with similar problems will post for you....

[sue41]

Please be careful with the ambien.  I think that is the most dangerous drug out there.  When I was taking it, I would drive in my sleep and almost killed myself.  By the grace of God alone, I wasn't injured or anyone else.  Please think about something other than ambien.  Even though it is non-narcotic, it is evil

[usarmymedic1]

ok PM me I am a certifed Occupational therapy assistant with 6 1/2 years experiance in Upper Extremity Rhab. going through all of this in the post will just get to long of a theard.

Medic

[susan303]

Hello,
I have RSD and it's no fun.  I was diagnosied in July 07 after getting hurt at work.  Something that may help you with your problems and help you get to sleep is a drug called Zanaflex.  It's a muscle relaxer that is also used to treat MS patients as well as those of us that have RSD.   I use it for the tingling and muscle spasms on my left side.  You don't have to have RSD to use it.  If you have RSD your doctor will need to put you on Lyrica or Gabapentin this will also help you.  I hope this helps you.. God Bless... Susie

[scargirl]

I will be carefull with ambien although i only get about 1-3 hr sleep when i take a 10 mg pill.  its awfull. I am moving on to trazadone.   WT he** ????  
I have tried zannaflex,  no help.  lyrica- thunderclap headaches and vertigo.
( i forgot to mention i take phenegran prn for vertigo and nauseau as well)
Neurotin practically the same side effects as the lyrica.
WHAT I WANT TO KNOW IS~ what should i do????  ask for as far as meds go?
( i know your not dr's but i am def. getting the run around and spending way to much $$$$- I just want help- and advice )

PM wanted to put me on fentanyl patch but i occassionally do have to drive i do have drs app. what seems like all the time. I do have to go to vet, grocery, walmart etc.

Huspand works 90 hrs easy per week.  sister with child taking care of sick huspand, mother school and work full time, father not in picture.  
I was hesitant not only b/c PM said I wouldn't be able to drive or do many daily activities that we all HAVE to do regardless of pain. But b/c of the recall and overdose's associate with them.

I think I was actually getting more relief from the 4 loritab 10's per day then the 3 percocets per day but it is to soon to tell i guess.  I am having muscle stiffness, and spasm. PM hesitate to persribe soma the only muscle relaxant that has every worked for me..... i have tried all of them but 1 other and idk name starts with N........ hementioned it before he put me on Robaxin. I told him this yesterday as we went through a list.( I AM WEIRD OR MY BODY IS WEIRD WHEN IT COMES TO MEDS SINCE MY HEAD INJURY)  
I have experimented with all neurologic type drugs with my neuro.  HE ACTUALLT DOES UNDERSTAND- DOES LISTEN. I thought I wasnt happy untill my recent visit to 3-4 other doctors and wow i was pushed in and out and my family was given a hard time when attending even when i signed a release. ( my neuro is soooo good to me i drive 40 miles each way to see him but now i realize how good he really is)

Medic~ do you know anyhting about total motion release???? It is a type of therapy where they work the unaffected side of your body to help the effected side.
PT who did not dicharge me but told me she did not think she couldhelp me since I was already in my 9th wk with little to know results reffered me. but 3 different ortho's ( with 3 differeent opinions on my MRI) and my PM will not send me there BS huh. I am just searching for some kind of help!

Pain control and muscle spasm control I do sometime have tremors. where i am just lying and i twitched neuro knows but PM really doesnt give a **** i dont think.

I listen to guided imagry for PTSD and pain relief, I use and tens unit and a theracane heat pads, ortho pedic earth shoes,
Last night I was in the tub at midnight trying to relieve spasms in neck upper trap and legs- even after robaxin.

I am so sad, chronically depressed and disabled I want some of a life back I want to excercise,  plaant flowers, rake leaves,  even mow grass all the things i disregarded as being precious
before now that i cant!

WILL someone PLease tell me some kinda advice that has been unsuccefull with meds, and other pain relief, or therapy.
or any inspiring stories or any thing would be great!
If you pray to god please pray for me!  I need it i feel so alone!
Thank you~

[Cindee56]

I am so sorry you are going through this.  You are too young to be in such pain.  I have a lot of pain issues and arthritis, back and neck problems and such but I am much older than you are.

I don't know really what to tell you that you probably haven't tried, but I can say that in my experience with doctors, if I don't like one or feel he's not helping, I keep looking for another.  If your PM doctor is not helping, try to find another one.  Is there a large university, maybe a teaching hospital near you?  They usually have good people and are doing research so they know the latest stuff.  Maybe see a rheumatologist.  Also, have you tried things like accupuncture, massage therapy, aqua therapy?  I know it can get expensive, but it's worth a try.  I am thinking of trying accupuncture myself.

For the sleep meds and depression, get a good psychiatrist, if you don't already have one.  They can be an invaluable help.  There is an anti-depressant called Cymbalta, a newer one, which is supposed to help with chronic pain as well as anxiety and depression.  There are tons of different drugs, you need a doctor who is very knowledgeable about the meds.  Personally, I don't like ambien, it's addictive and you are right, it doesn't last.  Have you tried Lunesta?  My husband takes that with good results.  It's not as addictive as ambien either and he doesn't get that drowsy all day feeling from it.

As far as exercise, can you find a pool?  When I hurt, the warm water is soothing and you can lightly swim or walk in the water for some movement.  Also, a recumbent bike that supports your back might be something you can do.  I have neck pain